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National data opt-out programme

Summary

The national data opt-out is a service that allows patients to opt out of their confidential patient information being used for research and planning.

Top tasks

Patients can find out more and set their opt-out choice at nhs.uk/your-nhs-data-matters.

Health and care staff can download leaflets, posters and other resources to use when informing patients.

Organisations can find out how to make sure they are compliant with the national data opt-out policy by March 2020.

The national data opt-out was introduced on 25 May 2018, enabling patients to opt out from the use of their data for research or planning purposes, in line with the recommendations of the National Data Guardian in her Review of Data Security, Consent and Opt-Outs. 

Patients can view or change their national data opt-out choice at any time by using the online service at www.nhs.uk/your-nhs-data-matters.

By 2020 all health and care organisations are required to be compliant with the national data opt-out policy, where confidential patient information is used for research and planning purposes. NHS Digital and Public Health England are already compliant and are applying national data opt-outs. Find out more about compliance.

Join the national data opt-out mailing list

Fill in the national data opt out team contact form to be added to our mailing list for health and care professionals, to keep up to date with news on the national data opt-out. Please note, you cannot use this form to set an opt-out choice.

Further information

  1. internal

    Information for GP practices

    The national data opt-out has replaced type 2 opt-outs. GP practices must no longer use the type 2 opt-out codes to record a patient's opt-out choice.

  2. internal

    Guidance for detained and secure estates

    Registering a national data opt-out by proxy for patients in the detained and secure estate, and preventing the use of invalid codes in TPP SystmOne.

Last edited: 26 March 2019 3:44 pm