National data opt-out programme

Summary

The national data opt-out is a new service that allows people to opt out of their confidential patient information being used for research and planning.

Top tasks

Patients can find out more and set their opt-out choice at nhs.uk/your-nhs-data-matters.

Health and care staff can download leaflets, posters and other resources to use when informing patients.

The national data opt-out is introduced on 25 May 2018, providing a facility for individuals to opt-out from the use of their data for research or planning purposes. This is provided in line with the recommendations of the National Data Guardian in her Review of Data Security, Consent and Opt-Outs. The service will initially be in beta, while we ensure the service design is optimal.

Individual preferences will be collected from 25 May and by 2020 all health and care organisations are required to have applied these preferences in all research and planning situations in which confidential patient information is used. NHS Digital will apply these preferences with immediate effect.

The national data opt-out will replace the previous ‘type 2’ opt-out, which required NHS Digital to refrain from sharing a patient’s confidential patient information for purposes beyond their direct care. Any person with an existing type 2 opt-out will have it automatically converted to a national data opt-out from 25 May 2018 and will shortly receive a letter giving them more information and a leaflet explaining the new national data opt-out. We will continue to collect and convert type 2 opt-outs during the beta phase. 

The national data opt-out choice can be viewed or changed at any time by using the online service at www.nhs.uk/your-nhs-data-matters.

Join the national data opt-out mailing list

Fill in the national data opt out team contact form to be added to our mailing list.

Attend a webinar on the national data opt-out

The National Data Opt-out Programme is running a series of webinars to help organisations understand what they will need to do to support patients and the public to find out more about the national data opt-out choice available from 25 May 2018.

Find out more about the national data opt-out webinars and book your place.

Further information

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    Information for GP practices

    The national data opt-out replaces type 2 opt outs. GP practices will no longer use the type 2 opt out code to record a patient's opt out choice.