All health and care organisations in England are required to comply with the national data opt-out policy by September 2021. (This deadline has been extended to enable health and care organisations to focus their resources on the coronavirus (COVID-19) outbreak.) Find out what you need to do for your organisation to comply.
Specific guidance for GP practices and detained and secure estates
Nursing, midwifery and care staff have a key role in helping patients understand the importance of information and these resources help you to support your patients make an informed choice about how their confidential patient information is used for research and planning.
Helplines are highly effective at engaging with, and providing support to, patients who may find it challenging to access mainstream healthcare provision. This printable guide explains the national data opt-out in more detail, and provides information for call handlers on where to signpost callers for more information.
We know that local patient groups, voluntary sector organisations, faith groups and other local forums are well placed to have conversations with their members and networks, including about sharing of health and care information. This printable guide is designed to inform voluntary and community sector partners about the national data opt-out.