We have detected that you are using Internet Explorer to visit this website. Internet Explorer is now being phased out by Microsoft. As a result, NHS Digital no longer supports any version of Internet Explorer for our web-based products, as it involves considerable extra effort and expense, which cannot be justified from public funds. Some features on this site will not work. You should use a modern browser such as Edge, Chrome, Firefox, or Safari. If you have difficulty installing or accessing a different browser, contact your IT support team.
Mythbusting social media posts
A number of posts are circulating on social media about the national data opt-out, containing incorrect information. View our mythbusters which look at these claims to give you the facts you need to make your choice.
-
Set your data opt-out choice
Patients can find out more and set their opt-out choice on the NHS website.
-
Comply with the national data opt-out
Organisations can find out how to ensure they are compliant with the national data opt-out policy by the deadline.
The national data opt-out was introduced on 25 May 2018, enabling patients to opt out from the use of their data for research or planning purposes, in line with the recommendations of the National Data Guardian in her Review of Data Security, Consent and Opt-Outs.
Patients can view or change their national data opt-out choice at any time by using the online service at www.nhs.uk/your-nhs-data-matters or by calling 0300 3035678.
By 2021 all health and care organisations are required to be compliant with the national data opt-out policy.
Further information
-
external
Health Education England national data opt-out training
Take this brief module on e-learning for health.
-
internal National data opt-out: data protection impact assessment
The data protection impact assessment shows how the processing of national opt-out data has been considered in order to identify and minimise any data protection risks.
-
internal Compliance with the national data opt-out
The deadline for health and care organisations to comply with national data opt-out policy is now 30 September 2021. It has been extended to enable health and care organisations to focus their resources on the coronavirus (COVID-19) outbreak. Find out what you need to do.
-
internal Guidance for health and care staff
Guidance and information for health and care staff about the national data opt-out, including GP practice, nursing, midwifery, care, voluntary and helpline staff.
-
internal Supporting your patients - information and resources
Leaflets, posters, recommended text for privacy notices and more information you can use, to help your patients understand their national data opt-out choice.
-
internal Information for GP practices
What GP practices need to do to comply with the national data opt-out policy, and provide your patients with appropriate information.
-
internal Guidance for detained and secure estates
How to register a national data opt-out by proxy on behalf of your patients.
-
internal Understanding the national data opt-out
Overview of the national data opt-out policy, to help you understand how opt-outs work and which data uses or disclosures are in scope.
-
internal National data opt-out statistics
Statistical analysis of national data opt-outs and how they might affect data used for research and planning.
-
internal National Data Opt-Out: GDPR information
Why and how we process your data in the National Data Opt-Out and your rights.
-
internal National data opt-out: equality impact assessment
The equality impact assessment demonstrates how the service complies with the public sector equality duty.
Last edited: 9 February 2021 4:54 pm