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National data opt-out

The national data opt-out is a service that allows patients to opt out of their confidential patient information being used for research and planning.

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Patients can find out more and set their opt-out choice at nhs.uk/your-nhs-data-matters.

GP practices can view our GP practice information for the latest updates on compliance and clinical system functionality.

Health and care staff can download leaflets, posters and other resources to use when informing patients. Staff can also read our overview of the policy - Understanding the national data opt-out.

Organisations can find out how to make sure they are compliant with the national data opt-out policy by March 2020.

The national data opt-out was introduced on 25 May 2018, enabling patients to opt out from the use of their data for research or planning purposes, in line with the recommendations of the National Data Guardian in her Review of Data Security, Consent and Opt-Outs. 

Patients can view or change their national data opt-out choice at any time by using the online service at www.nhs.uk/your-nhs-data-matters or by calling 0300 3035678.

By 2020 all health and care organisations are required to be compliant with the national data opt-out policy. NHS Digital and Public Health England are already compliant and are applying national data opt-outs. 

Related pages

  2. internal

    Guidance for health and care staff

    Guidance and information for health and care staff about the national data opt-out, including GP practice, nursing, midwifery, care, voluntary and helpline staff.

  4. internal

    Information for GP practices

    What GP practices need to do to comply with the national data opt-out policy, and provide your patients with appropriate information.

Last edited: 17 February 2020 3:34 pm