National data opt-out
The national data opt-out is a service that allows patients to opt out of their confidential patient information being used for research and planning.Mythbusting social media posts
A number of posts are circulating on social media about the national data opt-out, containing incorrect information. View our mythbusters which look at these claims to give you the facts you need to make your choice.
The national data opt-out was introduced on 25 May 2018, enabling patients to opt out from the use of their data for research or planning purposes, in line with the recommendations of the National Data Guardian in her Review of Data Security, Consent and Opt-Outs.
Patients can view or change their national data opt-out choice at any time by using the online service at www.nhs.uk/your-nhs-data-matters or by calling 0300 3035678.
By 30 September 2021 all health and care organisations are required to be compliant with the national data opt-out policy.
Further information
Take this brief module on e-learning for health.
The data protection impact assessment shows how the processing of national opt-out data has been considered in order to identify and minimise any data protection risks.
The deadline for health and care organisations to comply with national data opt-out policy is now 30 September 2021. It has been extended to enable health and care organisations to focus their resources on the coronavirus (COVID-19) outbreak. Find out what you need to do.
Guidance and information for health and care staff about the national data opt-out, including GP practice, nursing, midwifery, care, voluntary and helpline staff.
Leaflets, posters, recommended text for privacy notices and more information you can use, to help your patients understand their national data opt-out choice.
What GP practices need to do to comply with the national data opt-out policy, and provide your patients with appropriate information.
How to register a national data opt-out by proxy on behalf of your patients.
Overview of the national data opt-out policy, to help you understand how opt-outs work and which data uses or disclosures are in scope.
Statistical analysis of national data opt-outs and how they might affect data used for research and planning.
Why and how we process your data in the National Data Opt-Out and your rights.
The equality impact assessment demonstrates how the service complies with the public sector equality duty.
Last edited: 23 April 2021 3:46 pm