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Digital

National Data Opt-Out

Summary

NHS England keeps a list of NHS numbers for people who have chosen not to share their confidential patient information for research and planning. This allows their records to be removed from datasets before they are used.

Controller NHS Digital
How we use the information (processing activities)

Collection and maintenance of the list of NHS numbers associated with the patient records of people, who have opted out of sharing their confidential patient information for research and planning purposes. This is so that their records can be removed from datasets before use. This data is held on the cloud to enable better integration with health and care organisations and their systems
Does this contain sensitive (special category) data such as health information? No
Who are recipients of this data?

None
Is data transferred outside the UK? Within Europe
How long the data is kept 3 years minimum after no longer required
Our lawful basis for holding this data Legal obligation
Your rights
  • Tick Be informed
  • Tick Get access to it
  • Tick Rectify or change it
  • Cross Erase or remove it
  • Tick Restrict or stop processing it
  • Cross Move, copy or transfer it
  • Cross Object to it being processed or used
  • Cross Know if a decision was made by a computer rather than a person
How can you withdraw your consent?

Consent not the basis for processing - Patient preference available via opt out
Is the data subject to decisions made solely by computers? (automated decision making) No
Where does this data come from? Data subject
The legal basis for collecting this data

 

Legal obligation (Direction) and management of health and social care systems

Where we use this data

internal

National Data Opt-Out

The National Data Opt-Out (NDOO) service lets people decide whether their confidential patient information can be used for research and planning.