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National Data Opt-Out open data dashboard

This dashboard presents information on national data opt-outs. The national data opt-out was introduced on 25 May 2018 following recommendations from the National Data Guardian and indicates that a patient does not want their confidential patient information to be shared for purposes beyond their individual care across the health and care system in England.

Beta version

This is a public beta version of this dashboard. It may change without notice. We welcome your feedback about this release.

What this data shows

This dashboard provides information on the number of unique NHS numbers with an associated national data opt-out.

The national data opt-out was introduced on 25 May 2018. It was introduced following recommendations from the National Data Guardian. It indicates that a patient does not want their confidential patient information to be shared for purposes beyond their individual care across the health and care system in England.

The service allows individuals to set a national data opt-out or reverse a previously set opt-out. It replaced the previous type 2 opt-outs which patients registered via their GP practice.

The data is received from all sources, via the app, online portal, GP practice or over the phone. It is reported from 12 May 2021 and includes the number of people who have a national data opt-out, broken down by:

  • NHS region
  • NHS clinical commissioning groups
  • age (10 year bands)
  • gender

The publication series provides statistics on national data opt-out from July 2018 and information about methodology change and appropriate caveats.

This publication includes the number of people who have a national data opt-out, broken down by age, gender and a variety of geographical breakdowns


Dashboard

I can't see the dashboard

This dashboard uses Javascript, and you may need to enable this to see the content. If you cannot use Javascript, then you can download the data as a .csv file. The associated metadata is shown further down this page.

Users of Internet Explorer may not be able to load the dashboard. You can try viewing this dashboard on a modern browser such as Chrome, Edge, Firefox, or Safari.


How recent this data is

The aim is to update the dashboard with daily counts frequently, depending on user feedback.

The date of the latest update is shown on the dashboard.


Caveats and notes

The charts can display the opt-out count of patients or the opt-out rate – when comparing patient or geographical groups, please use the opt-out rate (rather than opt-out count) as this takes into consideration the population of the groups. These rates do not factor in differing demographics so some unaccounted-for variation will remain.

Patients registered at a GP practice is the source for the population data. It will be updated in line with the publication series. Therefore at the start of the month the dashboard will continue using latest data available.

Daily snapshots have only been taken from 12 May 2021 as there was an initiative to monitor following publication of the GP Data for Planning and Research Data Provision Notice (DPN). The data allows users to understand and measure the possible impact of opt-outs on data published by NHS Digital. Data prior to May 2021 can be found in the publication series [MI] National Data Opt-Out - NHS Digital.

There are gaps in the timeseries where we are unable to identify any national data opt-outs due to data processing. These will be captured on the next day where data is presented.

If you need help with this dashboard, or if it isn't working properly, then contact the NHS Digital customer service centre. 

We are open 9am to 5pm, Monday to Friday, except on public holidays.

Email: enquiries@digital.nhs.uk

Telephone: 0300 303 5678


Dashboard data set and metadata

The metadata below includes descriptions of the data items. Please note the data file only includes weekly data for every Wednesday since 12 May 2021.

Field Description Values
Org Code Organisation code

Blank

NHS geography code

ONS Code Organisation ONS code

Blank

NHS geography ONS code

Org name Organisation name

England

NHS geography name

Date Date on which the number of opt-outs was counted  
Demographic Group

Demographic information (age, gender) about the patients with national data opt-out.

Please note:

  • all = all patients
  • unknown = unknown age
All
0-9
10-19
20-29
30-39
40-49
50-59
60-69
70-79
80-89
90+
Unknown 
Male
Female
Opt-Out Count Count of national data opt-outs (does not include deceased)  
Population Count of patients registered at the GP practice (does not include deceased)  
Opt-Out Rate Percentage of the population with an opt-out (opt-out count divided by population)  

 

Last edited: 3 August 2021 8:40 am