Data set catalogue

Data sets are readily available to request through Data Access Request Service (DARS). These may be provided either in the Secure Data Environment (SDE), as an extract, or through the DigiTrials Outcomes service.

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Adult Psychiatric Morbidity Survey (APMS)

Provides data on the prevalence of both treated and untreated psychiatric disorder in the English adult population (aged 16 and over).

Breast and Cosmetic Implant Registry (BCIR)

A data set containing details of individuals who have had breast implant procedures in England, by both NHS and private providers.

Cancer Registration Data (Cohort based studies only)

The Cancer Registration data set contains records of cancer registrations, including the registration date and place, but also information about type of cancer or its site. Records are provided to NHS Digital by Public Health England, to enable up-to-date data on cancer registrations in cohort data disseminations for which submission of a patient participation list will be required.

Civil Registrations of Death

Details of all registered deaths in England and Wales since 1993, as provided by the Office for National Statistics (ONS). It contains details of the registration and basic demographics of the deceased person. This data set may be used in cohort data disseminations, in which case submission of a patient participation list will be required.

Community Services Data Set

A patient-level data set providing information about publicly funded community services for children, young people and adults. These services can include health centres, schools, mental health trusts, and health visiting services.

COVID-19 Electronic Prescribing and Medicines Administration (ePMA) in Secondary Care

Collection of data between 2019 and 2023 sourced from hospital ePMA systems relating to medicines prescribed and administered to patients, to support the response to the COVID-19 pandemic.

COVID-19 Ethnic Category Data Set

NHS Digital has created this small stand-alone data set by combining GDPPR ethnic category with the latest available ethnicity data in HES to increase coverage in ethnic category data.

COVID-19 General Practice Extraction Service (GPES) Data for Pandemic Planning and Research (GDPPR)

To support the response to the coronavirus outbreak, NHS Digital has been asked to establish a central collection of GP patient data for COVID-19 purposes for the duration of the coronavirus emergency period.

COVID-19 Second Generation Surveillance System (SGSS)

Demographic and diagnostic information concerning antigen test reports for COVID-19, in England only. This dataset currently includes the first positive results from Pillar 1 (swab testing in PHE and NHS hospital labs), and Pillar 2 (swab testing for the wider population).

COVID-19 UK Non-hospital Antigen Testing Results (Pillar 2)

Data related to the second Pillar of the Government’s testing programme. It is a collection on antigen swab COVID-19 testing, conducted via drive-through test centres, mobile testing units, satellite test centres, home testing and care home testing.

COVID-19 Vaccination Adverse Reactions

Records relating to patients who have had any adverse reaction to a COVID-19 vaccination, which occur within the first 15 minutes after administration of the vaccine. Scope covers any adverse reactions that occur within the first 15 minutes after administration of the vaccine for vaccination events in England, or events from devolved administrations where this information was subsequently passed to England.

COVID-19 Vaccination Status

Recording individual vaccination events, details of the patients and batch information on the vaccine for anyone vaccinated within England, or those vaccinated in a devolved administration where this information was passed to England.

Demographics (Cohort based studies only)

Demographics data set is derived from the Personal Demographics Service (PDS) for secondary (non-clinical) uses. It includes records of all patients registered with primary care in the NHS in England, Wales and Isle of Man in or after 2004, as well as patients who have utilised the NHS via secondary care in England (only) or patients who, since April 2015, have paid the Immigration Health Surcharge. The Demographics data set is used in cohort data disseminations for which submission of a patient participation list will be required.

Diagnostic Imaging Data Set

Data on NHS-funded diagnostic imaging tests, such as MRI scans and x-rays, extracted from NHS providers' radiological information systems.

Emergency Care Data Set (ECDS)

The data set containing details of all A&E attendances at NHS hospitals in England, including minor injury units and NHS walk-in centres, as well as 24 hour and consultant-led emergency departments. The ECDS will eventually replace the Hospital Episodes Statistics: Accident and Emergency (HES A&E) data set.

General Practice Workforce Data

This quarterly record-level data set includes details about individuals, practices and work being undertaken by GPs, Nurses, Direct Patient Care and Admin/Non-Clinical staff working in General Practice in England such as job role and hours worked

Hospital Episode Statistics

HES data is available from four data sets, that is, Hospital Episode Statistics Admitted Patient Care (HES APC), Hospital Episode Statistics Critical Care (HES Critical Care), Hospital Episode Statistics Outpatients (HES OP), and Hospital Episode Statistics Accident and Emergency (HES A&E). For emergency care data from 1 April 2020, the Emergency Care Data Set (ECDS) should be requested.

Improving Access to Psychological Therapies (IAPT)

A patient-level, secondary-uses data set, which provides nationally consistent and comparable person-based information about people referred to IAPT services for depression and anxiety. It contains information extracted or derived from local information systems within NHS-commissioned services across England.

Maternity Services Data Set

A patient-level data set that captures information about activity carried out by maternity services, relating to a mother and baby(s).

Medicines Dispensed in Primary Care (NHSBSA)

A data set containing records of medicines dispensed in primary care settings, such as general practice, community clinics, dentists and nursing services.

Mental Health data (MHMDS, MHLDDS, MHSDS)

Includes data about adults in receipt of NHS funded specialist, secondary mental health or learning disability services.

Mental Health of Children and Young People (MHCYP)

This survey series provides England’s best source of data on trends in child mental health. The latest survey, conducted in 2017, with a 3 year follow up survey in July 2020, is now available to request from DARS.

National Diabetes Audit

One of the largest annual clinical audits in the world. It measures the effectiveness of diabetes healthcare against NICE Clinical Guidelines and NICE Quality Standards in England and Wales, for both primary and secondary care.

NDRS Cancer Consolidated Data Set

This is a new product which consolidates three NDRS data sets; National Cancer Registrations, Cancer Pathways and Rapid Cancer Registrations.

NDRS Cancer Registration (pre-1995)

This data set contains information about patients diagnosed with a registerable tumour in the calendar years 1985 to 1994. It is very limited and applicants wishing to process this data must first discuss their requirements with the NDRS team to confirm whether the data set can be used for their request.

NDRS Lung Cancer Data Audit (LUCADA)

This audit looks at the care delivered during referral, diagnosis, treatment and outcomes for people diagnosed with lung cancer and mesothelioma.

NDRS National Cancer Diagnosis Audit (NCDA)

This data set contains information from clinical audits carried out at specific points in time, focusing on the diagnostic pathway for patients diagnosed with cancer.

NDRS National Cancer Patient Experience Survey (CPES)

CPES was commissioned by NHS England to collect information via a survey directly from patients with a primary diagnosis of cancer about their experiences. The survey aims to collect information from patients about their experience of the cancer journey from their initial GP visit prior to diagnosis, through diagnosis and treatment and to the ongoing management of their cancer

NDRS National Lung Cancer Audit (NLCA)

This audit data set follows on from the LUCADA data, beginning in 2015.

NDRS National Radiotherapy Data Set (RTDS)

This data set contains information about patients diagnosed with cancer in the calendar year 1995 onwards, with radiotherapy treatment details available from 1 April 2009 onwards.

NDRS Quality of Life of Cancer Survivors in England: (Breast, Colorectal, Prostate, Non-Hodgkin’s Lymphoma)

This data set is from a pilot of Patient Reported Outcome Measures (PROMs) data collected in 2011-12, based on a questionnaire distributed to a representative sample of patients with four different tumour types.

NDRS Quality of Life of Colorectal Cancer Survivors in England: Patient Reported Outcome Measures Survey (PROMS)

This data set contains responses to a questionnaire distributed to colorectal cancer patients in January 2013, with over 34,000 responses collected.

NDRS Somatic Molecular Data Set

This data set begins in 2016 and is ongoing. It contains somatic molecular testing data collected directly from molecular diagnostics laboratories in England. The data covers tests for genetic mutations occurring only in the tumour. Data is received from molecular diagnostic laboratories in England. The data set includes information about the number, type and date of tests for each gene tested.

NDRS Systemic Anti-Cancer Therapy data set (SACT)

This data set contains information about patients treated with chemotherapy from April 2012 onward (data prior to July 2014 has some completeness issues). It contains clinical details about anti-cancer therapies and includes information such as the date when a decision to treat was made, treatment cycle dates, and treatment regimen outcome.

An annual national survey, conducted by Councils with Adult Social Services Responsibilities (CASSRs), gathering information from a sample of services users; aged 18 and over; in receipt of long-term support services funded or managed by social services.

A biennial survey, conducted by Councils with Adult Social Services Responsibilities (CASSRs), collecting information from and about adult carers, caring for a person aged 18 or over, who have been assessed or reviewed by social services (or where the cared-for person has received respite or another form of carer support).

Sentinel Stroke National Audit Programme (SSNAP)

A major national healthcare quality improvement programme that measures both the processes of care (clinical audit) provided to stroke patients, as well as the structure of stroke services (organisational audit) against evidence-based standards, including the 2016 National Clinical Guideline for Stroke. NHS Digital receives a subset of patients treated in England only for the purpose of COVID research data requests.

Summary Hospital-level Mortality Indicator (SHMI)

The SHMI is the ratio between the number of patients who die following hospitalisation at the trust and the number that would be expected to die on the basis of average England figures, given the characteristics of the patients treated there.

Uncurated Low Latency Hospital Data Sets for Admitted Patient Care, Outpatient Care, Critical Care and Emergency Care

The Secondary Uses Service (SUS) is the single, comprehensive repository for healthcare data in England. It is the national repository for all Commissioning Data Set (CDS) submissions.