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NDRS Quality of Life of Colorectal Cancer Survivors in England: Patient Reported Outcome Measures Survey (PROMS)

This data set contains responses to a questionnaire distributed to colorectal cancer patients in January 2013, with over 34,000 responses collected. The survey questionnaire gathers information about patient experience of the cancer journey from a diagnosis of colorectal cancer to treatment and experiences of aftercare. This is a standalone data set that cannot be linked to other data sets, as it does not contain NHS number.

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Data set versions as presented in the DARS online system

NDRS Quality of Life of Colorectal Cancer Survivors in England

Access method

Extract only 

Data set available in packages

Packages are pre-defined groups of fields and or tables that allow a customer to select from a list that best meets their needs. Packages do not allow a customer to customise their field or table selection.

  • No

Period of data coverage

01/01/2013 to 31/12/2013

Geographical scope of data

England

Linkable to other data sets

  • No - limited NDRS linkage only

Data collection process

Submitted by: Invited patients

Collected by: National Disease Registration Service

Frequency: Static

Clinical coding systems

Does the data set include any standardised systems of coding?

  • None
Full list of coding systems considered

SNOMED-CT (a structured clinical vocabulary for use in electronic health records.)

ICD  (International Classification of Diseases classifies diseases and other health conditions.)

OPCS-4  (Office of Population Census and Surveys classification of interventions and surgical procedures)

dm+d  (Dictionary of descriptions and codes which represent medicines and devices in use across the NHS.)

NICIP (National Interim Clinical Imaging Procedure provides consistent recording of imaging procedures.)

UCUM  (Unified Code for Units of Measure (UCUM) is a code system intended to include all units of measurement.)

TFCs (Treatment Function Codes are used to record treatment activities undertaken)

Read Code v2  (A coded thesaurus of clinical terms.)

Read Code Clinical Terms v3 (A coded thesaurus of clinical terms.)

UICC (Union for International Cancer Control classification of cancer by anatomic disease extent.)

IMD  (Indices of Multiple Deprivation measures relative poverty.)

Derived fields

Standardised formulation may be applied across multiple data sets to generate commonly derived fields.  Any standard derivations applicable to this data set are listed below. Please note that this does not include bespoke derivations created specifically for the individual data set.

  • None
Full list of standard derivations considered

GP_PRACTICE_CODE_TRACED (The GP practice that the patient is registered at, as found when traced against the Person Demographic Service (PDS).)

CCG_OF_RESIDENCE (Clinical Commissioning Group covering the area in which the patient’s postcode falls where data relates to pre 1 July 2022. Otherwise ICB Sub Location.)

ICS_OF_RESIDENCE (The Integrated Care System covering the area in which the patient’s postcode falls. This will be null for any data relating to earlier than 1 July 2022.)

LA_OF_RESIDENCE (The Local Authority covering the area in which the patient’s postcode falls.)

LSOA_OF_RESIDENCE (The Lower Super Output Area (lowest level without being disclosive) covering the area in which the patient’s postcode falls.)

CCG_OF_REGISTRATION (Clinical Commissioning Group which has a commissioning relationship with the GP practice which the patient is registered at where data relates to pre 1 July 2022. Otherwise ICB Sub Location.)

ICS_OF_REGISTRATION (The Integrated Care System covering the area in which the patient’s GP practice falls. This will be null until for any data relating to earlier than 1 July 2022.)

LA_OF_REGISTRATION (The Local Authority covering the area in which the patient’s GP practice falls.)

LSOA_OF_REGISTRATION (The Lower Super Output Area (lowest level without being disclosive) covering the area in which the patient’s GP practice falls.)

Third party licensing

Does the data set require copyrighted clinical assessment tools or outcome measures that require a licence?

  • None

Advice and support

Governance of this data set is provided by:

Owning organisation: NHS England

Data Controller: NHS Digital

Data Processor: NHS Digital

NHS Digital provides a variety of functions for the data sets we make available.  Therefore, our knowledge and understanding of the data will vary, impacting the level of advice and support we can provide.

In relation to this data set, we have acquired the data from an external third party to enable our use for specific health and care purposes. We may be able to offer some guidance but for full advice and support we will refer you to that external third party. 

Supporting documentation and guidance

Last edited: 26 February 2024 8:40 am