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National Disease Registration Service (NDRS)

The National Disease Registration Service (NDRS) is an international leader in population-based disease registration services, real-world clinical data, quality assurance, surveillance, analysis and monitoring. 

NDRS includes the National Cancer Registration and Analysis Service (NCRAS) and the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) population-based registers, with strong clinical engagement and subject matter expertise with significant skills in data science, public health analytics and complex data processing systems.

To find out more about this service visit the NDRS website, where you can also read the NDRS transparency notice

On 1 February 2023, responsibility for the National Disease Registration Service (NDRS) and NHS Digital transferred to NHS England. NHS England is the data controller for this data. 

Opting out

NHS Digital has the experience, capability and expertise to keep the data safe and continue to provide access to those who need it to improve services for patients, allowing us to provide a comprehensive data service for the NHS.

If you do not want us to collect this information you can opt-out of the cancer, rare disease or congenital anomaly registry. 

Find out more about your rights and how to opt-out. Existing opt outs will continue to be respected.

Requests for access to NDRS data

To make an enquiry about access to NDRS data or to request a copy of the updated pre-application pack, visit the Data Access Request Service (DARS) page.

Contact us

If you have any questions and would like to contact the NDRS team you send an email to [email protected] or complete a contact us form.

Further information

For further information visit

Last edited: 21 February 2024 11:53 am