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NDRS Contact Page

General enquiries

Please use this form for general enquiries about cancer, rare disease and congenital anomaly registration and our work.

How to register

If you would like to find out how to register your cancer, congenital anomaly or rare disease, please visit the 'do I need to register' page to find out more. 

Patient information leaflets

If you are an NHS organisation and would like to order leaflets for your patients about the registration process, please email the team at [email protected] 

Opting out of disease registration 

You can find out more about opting out of disease registration on our patient information section of the website or by contacting the opt out team via  [email protected]


To see what data the National Disease Registration Service (NDRS) holds on you, you can make a Subject Access Request. Find out more about how to make a Subject Access Request via the NHS Digital website. 

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(Please note we will only use your email address and contact number to respond to this query or if you would like to speak to a member of the team. However, you do not need to provide either, if you do not require a response.)

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GDPR information

Whilst all online forms are submitted directly to an encrypted mailbox it is not guaranteed to be secure. Any personal information (for example date of birth, address or NHS number) is sent via email at your own risk. If you would prefer not to send personal information by email, please provide an outline of the nature of your query or feedback along with the best way to contact you and a member of the team will be in touch shortly. Also, if you prefer to speak to a member of the team please provide us with your contact number below and we will call you shortly.

Any personal information you give to us will be processed in accordance with the General Data Protection Regulation (GDPR) 2018. We will use the information to process your request and to provide any further relevant information or services you have requested. It will also be used to support our service development activities.