Please use this form for general enquiries about cancer, rare disease and congenital anomaly registration and our work.
How to register
If you would like to find out how to register your cancer, congenital anomaly or rare disease, please visit the 'do I need to register' page to find out more.
Patient information leaflets
If you are an NHS organisation and would like to order leaflets for your patients about the registration process, please email the team at [email protected]
Opting out of disease registration
You can find out more about opting out of disease registration on our patient information section of the website or by contacting the opt out team via [email protected].
To see what data the National Disease Registration Service (NDRS) holds on you, you can make a Subject Access Request. Find out more about how to make a Subject Access Request via the NHS Digital website.