Our work

Discover more about the work programmes and analytical outputs of the National Disease Registration Service and our partnerships with academia, health organisations and charities.

NDRS work programmes

Cancer

Discover more about our work using cancer data including in areas such key summary statistics, cancer diagnostics and awareness campaigns.

Congenital anomalies and rare diseases

Discover more about the work programmes focused on the congenital anomaly and rare diseases data.

Genomics

Discover more about our work using genomics data to support disease diagnostics, prevention and treatment in the NHS.

NDRS partnerships

EUROCAT

EUROCAT is the European network of population-based registries for the epidemiological surveillance of congenital anomalies.

Fetal Anomaly Screening Programme

The Fetal Anomaly Screening Programme (FASP) offers screening to all eligible women in England to try to find any health conditions their baby may have.

Ovarian Cancer Audit Feasibility Pilot (OCAFP)

The Ovarian Cancer Audit Feasibility Pilot (OCAFP) is a jointly funded partnership project with the British Gynaecological Cancer Society, Ovarian Cancer Action and Target Ovarian Cancer.

Coronavirus (COVID-19) response

Example of drive through covid test being performed

COVID-19 research

During the coronavirus (COVID-19) pandemic the National Disease Registration Service (NDRS) undertook several research projects to assess the impact of the pandemic on patient outcomes.

Rapid cancer data and reporting

During the coronavirus (COVID-19) pandemic the National Disease Registration Service (NDRS) worked to provide near real-time data for England to support clinical and policy decision making.

Find out more

RECORDER project

Discover how patient data was used to understand how people with rare autoimmune diseases have been affected by the coronavirus (COVID-19) pandemic.

NDRS publications and outputs

Screenshot of congenital anomalies 2020 report graph

Congenital anomalies annual reports

View all annual reports released by the National Congenital Anomalies and Rare Diseases Registration Service (NCARDRS) containing information on congenital anomalies detected in babies delivered between 2015 - 2020.

OCAFP disease profile publication

The Ovarian Cancer Audit Feasibility Pilot (OCAFP) publication on disease Profile in England: Incidence, mortality, stage and survival for ovary, fallopian tube and primary peritoneal carcinomas.

Image of the IMRT radiotherapy dashboard

Use of IMRT radiotherapy in England

Intensity Modulated Radiotherapy (IMRT) is a type of conformal radiotherapy which delivers precise radiation doses to a tumour while minimising the dose to surrounding tissue. The data presented in this tool represents the number of IMRT episodes delivered between 1 April 2014 and 31 March 2021.

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