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Privacy and Cookies

Personal information

At NDRS, we collect personal information for two main reasons:

  • because of our official role as the National Disease Registration Service
  • as part of our routine business, for example communications

You can read more about our role in health and care, and why we collect personal health information to improve patient outcomes.

This page is about the personal information we may collect about you as part of our routine business. We want you to understand why we hold and process this information, and your choices.

We always collect, hold and process information securely and legally.

Newsletters and bulletins

If you have opted to subscribe to our newsletter or updates you will be registered on a mailing list. Every communication you receive will have an option on it to remove yourself (unsubscribe) from the list. If you get correspondence that you do not want, and tell us what you want to unsubscribe from, and we will remove you from that list.

We do not pass your email address to any third parties. We only subscribe you to the list you have signed up for, and do not use your address to subscribe you to other lists.

Cookies on our website

Cookies are small text files that are placed on your computer by websites that you visit. They are widely used in order to make websites work, or work more efficiently, as well as to provide information to the owners of the site. On this site, if you have Javascript enabled, you will be offered a choice to have necessary cookies only, or to accept all cookies that we'd like to place. If you do not have Javascript enabled, you will only receive the necessary cookies.

Most web browsers also allow some control of cookies through the browser settings. To find out more about cookies, including how to see what have been set and how to manage and delete them, visit

If you do nothing other than read pages or download information, and you accept all cookies, we will capture and store some information about your visit. This information will not identify you, it relates to:

  • the anonymised IP address from which you access the website
  • the type of browser (Internet Explorer or Firefox etc) and operating system you use (Windows, Mac OS, UNIX)
  • the date and time of your visit
  • the pages you visit
  • the address of the web site from which you linked to us (if applicable)

This information is not shared with anyone and we do not merge this information with other data.

If you opt to accept cookies, we may also use information about what you do on our site, to help personalise your experience, and show you more of the things you are interested in.

We do not know the identities of the individuals who visit our website.

Embedded content and managing cookies

On some pages we embed video such as YouTube, charts such as PowerBI or provide links to popular social media sites such as Twitter and LinkedIn.  We always try to minimise the cookies set in this way, and they are included in our cookie declaration. These cookies are called ‘third party cookies’ and in some cases are beyond the control of NDRS.

Other websites

Our privacy notice only relates to information that we obtain from you.

If you visit a website operated by a third party through a link included on this website, your information may be used differently by the operator of the linked website.

When you are moving to another site you are advised to read the privacy notice relating to that website.

Contacting us by email, phone or post

Please contact us here. We collect the information that you give us, and use it to help resolve your query, to contact you about your query, and to improve our services.

Asking to see the information we hold about you

You have the legal right to request a copy of the information we hold about you, in line with the General Data Protection Regulation (GDPR). You can do this by making a subject access request.

Last edited: 15 August 2023 2:49 pm