Data Access Request Service (DARS)

View the range of data products and services available through DARS.

We make charges to cover the costs of managing your application, processing data and providing access. View our latest charging guidelines.

Not all enquiries progress to the application stage - it may be that your requirement can be satisfied through existing published data.

If you need any help or guidance with the DARS process, contact us.

When you're ready to proceed with an application you'll need to follow the DARS application process.

Once your DARS application has been approved, data will be made available either by secure electronic file transfer or through the Data Access Environment (DAE).

The National Disease Registration Service (NDRS) is a collection of data on all cancers, rare diseases and congenital anomalies diagnosed each year in England.

On 1 October 2021, the responsibility for the management of NDRS transferred from Public Health England (PHE) to NHS Digital. NHS Digital is now the data controller for this data.

Access of NDRS data via NHS Digital routes – update May 2022

As part of the long-term plan for data access to NDRS data through NHS Digital, we are beginning to transition the service from UKHSA Office for Data Release (ODR) to NHS Digital Data Access Request Service (DARS).

There are 3 stages to the transition of the service:

1. Expired or expiring data sharing agreements

From 9 May 2022, the NHS Digital DARS service will begin to contact all current ODR Data Sharing Agreement (DSA) holders with expired and expiring contracts to ascertain whether they wish to extend their contract or undergo the data deletion procedure.

2. Current applications

If you have an application already in the system, the DARS team will be making contact with you in the near future to confirm your data access request and provide you with an estimated completion timeline. This includes those who have applied for access to NDRS data since the transition of NDRS to NHS Digital on 1 October 2021.

3. Future applications

From 20 June 2022 applicants will be able to make new applications to the NHS Digital DARS service.

Please note, new expressions of interest, applications and amendments for NDRS data will no longer be taken forward by the ODR and will need to be made to NHS Digital directly.

When open, the intention is that DARS will initially only process applications for data which sit under the National Cancer Registration and Analysis Service (NCRAS) suite of products.

This webpage will explain the process and documentation needed to gain access to data via DARS.

Please note that this will be a beta service with initial release functionality that will be increased over the following months. This means that for the time being, applicants will only be able to request NCRAS data as prior, and not any additional linkage to NHS Digital datasets. Further information will be made available when this service is up and running.

For requests for data which sit under the National Congenital Anomaly and Rare Diseases Registration Service (NCARDRS) suite of products, please contact ndrsenquiries@nhs.net.

If you need further information about the current routes for NDRS data release please contact ndrsenquiries@nhs.net.

Our decisions and actions are bound by law and policies. We will check that there is an appropriate legal basis for us to receive, process and pass data to you. We will also check that you have safeguards in place so that you store and handle the data safely and securely.

We carry out data sharing audits to check that you meet the obligations in your data sharing contract and Data Sharing Agreement.

Learn more about how NHS Digital protects your information.

To discuss any aspect of DARS or an existing application call the team on 0300 303 5678 or email enquiries@nhsdigital.nhs.uk.

Existing customers can also contact their assigned case officer.