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NHS Digital Data Uses Register

NHS Digital’s Data Uses Register is published every month and provides information on our Data Sharing Agreements.

We have developed two Power BI reports, now published in beta to allow easy navigation. These reports can be used to interrogate each Data Sharing Agreement (DSA) for further details, such as:

  • the start and end date of the DSA
  • the organisation name(s) of the data controller(s)
  • whether the data controller(s) are sole or joint controllers
  • the purpose for which the data was provided
  • information on the datasets approved
  • the legal basis under which data is released
  • if they have permissions to onwardly (sub-license) share the data
  • if the application is for a commercial purpose
  • whether patient opt-outs* were applied to the dataset before release
  • details of physical files that were released and when

As this is the first version of the Power BI Data Uses Register, we welcome any feedback. Feedback can be sent to enquiries@nhsdigital.nhs.uk, with the subject: Data Uses Register Feedback.

In addition to the Power BI reports, we publish an .xlsx version of the Data Uses Register to meet accessibility standards.

The PowerBI report includes all DSAs active from Jan 2020. For previous DSAs please see our release register archive.

*Our patient opt-out policy explains when opt-outs do and do not apply in more detail.


Data Uses Registers

**The applicant organisation of a DSA is the organisation that submits the application to NHS Digital and is not always the organisation receiving or determining the purposes and means by which the data are processed. The data controlling organisation determines the purposes and means by which the data are processed.

The reports above are in Microsoft PowerBI which does not fully support all accessibility needs. If you need further assistance, please contact us for help.

National Back Office data release register

View the National Back Office (NBO) Data Release Register

This contains both Tracing service activity and Demographics Batch Service Bureau activity.


The Office of National Statistics (ONS) release register

Releases of NHS Digital data which are within the NHS Digital and Office for National Statistics jointly controlled Public Health Research Database (DSA NIC-420710-X0H1P) will be included in the ONS Release Register.


COVID-19 (non-DARS) data release register

The COVID-19 data release register contains details of the releases approved through a process which has been implemented specifically for COVID-19.

For further details on the programmes these releases relate to and the statutory basis which have been used see NHS Digital response to coronavirus (COVID-19).


Feedback

To provide feedback that can be considered in producing future versions of the release register, please email enquiries@nhsdigital.nhs.uk


Further information

Last edited: 2 August 2021 9:23 am