Suggested wording for fair processing information
This suggested wording is intended to be incorporated into a service's existing information for patients. It does not need to be a separate leaflet.
IAPT service providers MAY choose to use this wording (or elements of) or may use locally agreed wording, providing that responsibilities for fairness and transparency are met.
"We share information about you (your personal data) for the Improving Access to Psychological Therapies (IAPT) Data Set, to help achieve better outcomes and experiences of care.
The data set collects information about demographics (such as postcode, date of birth, ethnic category), referral, treatment and outcomes details.
The data is securely sent to NHS Digital which is the central organisation that receives the same data from all NHS-funded IAPT services across England.
The data set is used to produce anonymised national reports that show summary numbers of, for instance, numbers of patients referred to different IAPT services across the country as well as average waiting times and outcomes.
The reports help the NHS to improve the care it provides to you and other patients. No information that could reveal your identity is used in these reports.
The data may be linked with other sources of data to support a wider range of information within these national reports, such as to investigate the relationship between IAPT services and other care services.
For more information about how NHS Digital uses IAPT data including their lawful basis for processing, how long they hold it for and your rights, please see our GDPR register.
To manage your choice about how your confidential patient information is used for research and planning, please visit the following website: https://www.nhs.uk/your-nhs-data-matters/. Alternatively, you can call 0300 303 5678.
More information about the IAPT Data Set can be found on the NHS Digital IAPT web pages."