Digital Child Health

The Healthy Child Programme is an NHS-wide, preventative service that provides families with a programme of screening, immunisation, health and development reviews, supplemented by advice around health, wellbeing and parenting. It's offered to all families with a child in England and they are supported in understanding and documenting the pathway of care through a booklet they are given known as the Personal Child Health Record (PCHR), sometimes known as the red book.

The services offered and documented in the PCHR form a series of health events for all children, which are intended to promote:

• strong parent-child attachment and positive parenting, resulting in better social and emotional wellbeing among children
• care that helps to keep children healthy and safe
• increased rates of starting and continuing breastfeeding
• healthy eating and increased activity, leading to a reduction in obesity
• prevention of some serious and communicable diseases
• readiness for school and improved learning
• early recognition of growth disorders and risk factors for obesity
• early detection of - and taking action to address - delayed development, abnormalities and ill health, and concerns about safety
• identification of factors that could influence health and wellbeing in families
• better short and long-term outcomes for children at risk of social exclusion

The key health events in the Healthy Child Programme are being standardised across NHS systems, which will ensure that families, children and professionals will have digital access to the same information. This will record the interventions that a child has had in the Healthy Child programme pathway, and where follow-up services may be required.

The Digital Child Health (DCH) programme was created to support the vision in Healthy Children: Transforming Child Health Information.

The first step in providing modern, responsive services for children is to ensure that key health information (known as events) can be shared appropriately with all those involved in the care of a child. This is done by introducing standards and infrastructure supporting that information exchange and the first area of service delivery we are working with, to promote interoperability is the Healthy Child Programme.

We are working with colleagues across health, care and information technology to redesign information services to: 

• support personalised care
• promote the offer and uptake of preventative programmes
• provide the foundation for integration across the domains of health, social care and education

Find out more on the NHS England website.

What we're doing

The DCH programme will change the way information and technology is used. Between now and 2020, a number of improvements will be made in a phased programme of work.

Currently:

• healthcare professionals don't always have access to relevant health information
• personal child health records (PCHR) are still largely paper based - this is known as the Red Book
• some services are still reliant on paper-based transfers
• there's limited capability to manage children unregistered to GP practices, and to offer them preventative services

By 2020:

• there will be standards in place for exchanging Healthy Child Programme information
• there will be an interoperability layer for a digital personal child health record service (market enabled)
• interoperability will start to replace paper processes
• core child record datasets will be available in professional systems
• National Failsafe Management will identify when children are outside the care of the usual agencies and when they are missing preventative programmes of care 

The benefits of Digital Child Health

Benefits for professionals include:

• appropriate access to real time information at the point of care, helping to provide a better care experience for children and their families
• a view of child health information at the point of care
• the ability to record information about a child or a young person and to publish to those in the extended network of care
• up-to-date health events available in their own health record systems, without needing to access other systems
• a digitally improved failsafe management service to alert preventative programmes of care when an intervention is due or has been missed

Benefits for parents include:

• access to information so that health and care choices can be made
• an online record of their child's health and development
• ownership of the wellbeing of their child through links to guidance on healthy choices and preventing avoidable poor health
• the ability to share their health and wellbeing information with professionals
• being able to set preferences for information sharing and to see who subscribes to this information

Benefits for commissioners include:

• knowledge that children under care have received the appropriate health interventions to keep them healthy
• failsafe management services that will give assurances for safeguarding children
• the ability to analyse data and intelligence to make service improvements and modifications

Benefits for providers include:

• an information service that underpins the needs of health and care services
• the ability to offer digital services to parents, children and young people, which allow them to take ownership of their own care
• a choice of IT systems that will enable information to be exchanged across an extended network of care 

How it will work

This programme will digitally enable the child health care management approach across England, across care professions and in key care settings to help address risk areas and variability in how care is given.

It will establish the requirements for enabling the sharing of important events in a child's health pathway from pre-birth to 19 years. This will enable those involved in the care of a child to see appropriate information at the point of care, improving the patient experience and empowering professionals to make the best decisions.  

It will also provide an additional failsafe function where a potential event is not acted upon by highlighting these missed events to all professionals and the patient.

These changes will provide high quality, relevant, reliable information, and public health professionals will have access to more comprehensive and up-to-date datasets when the programme completes in 2020.  

The service will:

• connect primary care, child health services, school services and maternity services, allowing them to exchange event information
• enable real time access to data through electronic personal child health records, allowing parents, children and carers to manage the health of the child interactively

Regional areas may choose to set up a similar local service to the national service, to share information with other areas of health. Any local services sharing child health data will need to comply with the standard formats for data sharing being used at a national level.

There is a new information standard to support this programme.

Phase 1 of this information standard has been developed by the Professional Record Standards Body (PRSB), in collaboration with NHS Digital. It supports the move to sharing of child health information by setting out the Healthy Child Record specification that care providers should comply with, on a local basis, to ensure that all providers and their suppliers are using the same data in a standardised format.

Go to DCB3009 Healthy Child Programme specification on our website

Read more about the Healthy Child standard on the PRSB website.

Phase 2 of this information standard will improve how this standardised data can be shared across providers. More documentation will be added to the pages above as it is developed.