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Part of National data opt-out guidance for researchers

Appendix 2: gaining consent

2. Through a person identifying themselves as a potential participant

Potential participants can also identify themselves, for example, via a web portal giving their consent to be contacted by the research team. Potential participants are usually asked to complete a consent form setting out clearly what they are consenting to, e.g. permission to access their medical information.


3. Using privacy enhancing search tools

Computer software is available which can search clinical databases, selecting patient who are eligible for a specific research study, and will only reveal the identities of these potential participants to someone with a “legitimate relationship” to the patient (clinician/social worker), who can then contact the patient to obtain consent for them to be approached by a research team.

Last edited: 2 October 2019 3:50 pm