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This guide supports users with the implementation and collection of data as part of the Cancer Outcomes and Services Data set (COSD) v10.2.12 data set.

This guide supports users with the implementation and collection of data as part of the Systemic Anti Cancer Therapy (SACT) data set v4.0.2

The Rapid Cancer Registration Data set (RCRD) provides a quicker, indicative source of cancer data compared to the National Cancer Registration Dataset.

The NICPR dataset forms the basis of the National Inherited Cancer Predisposition Register, which is a centralised list of all English residents with a proven genetic predisposition to cancer.

The NDRS Genomics data set specifies a structure for collecting genomics test outcome data in the NHS. It enables recording of granular results using internationally agreed scientific nomenclature.

The Cancer Site-Specific Audit data sets collect supplemental clinical data on cancer diagnosis and care.

Learn more about the National Disease Registration Service (NDRS), who we are and why disease registration is important. 

The Rare Disease Data Set (RDDS) is the national standard for collecting rare disease data in the NHS. 

Summary of 2019 congenital anomaly statistics report released by National Congenital Anomaly and Rare Disease Registration Service, NCARDRS.

This page contains downloads for the Systemic Anti-Cancer Therapy (SACT) data set version 4.0.2