NCARDRS is a comprehensive registration service that collects and quality assures data on congenital anomalies and rare diseases in England.
NCARDRS is made up of 10 regions – 7 of which have been conducting congenital anomaly registration for some time. The 3 new regions covering the East of England, London and the South East, and the North West were established and started data collection from 1 April 2017.
In 2018, NCARDRS achieved its goal of national data collection. This report, covering births between January and December 2019, across all 10 regions, represents the second year of national data coverage for England.
Figure 1: Map of NCARDRS reporting regions England, 2019.
This important and reliable information is available for clinicians, researchers, patients, and their families thanks to the dedication of notifying healthcare professionals.
Find out more about our congenital anomalies and rare disease self registration service.