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Publication, Part of

Autism Statistics, July 2023 to June 2024

Experimental statistics, Official statistics in development

Issue with waiting time metrics – November 2024

We have identified a methodological issue with the calculation of the waiting time metrics resulting in an overcount in some metrics and an undercount in others. A fix has been implemented and a revised set of data has been provided on this page.  The revised data is based the latest available data at the time of re-run (July 2024)  which means the figures reported previously for all metrics have been refreshed. The interactive dashboard has also been updated with the revised data.  

Below are the affected metrics:

  • ASD18a - Number of patients with an open suspected autism referral in the month that has been open for at least 13 weeks receiving a first appointment after more than 13 weeks
  • ASD18b - Number of patients with an open suspected autism referral in the month that has been open for at least 13 weeks that have not had a care contact appointment recorded
  • ASD18e - Number of patients aged 0 to 17 with an open suspected autism referral in the month that has been open for at least 13 weeks receiving a first appointment after more than 13 weeks
  • ASD18f - Number of patients aged 0 to 17 with an open suspected autism referral in the month that has been open for at least 13 weeks that have not had a care contact appointment recorded
  • ASD18g - Number of patients aged 18 and over with an open suspected autism referral in the month that has been open for at least 13 weeks receiving a first appointment after more than 13 weeks
  • ASD18h - Number of patients aged 18 and over with an open suspected autism referral in the month that has been open for at least 13 weeks that have not had a care contact appointment recorded
  • ASD19a - Proportion of patients with an open suspected autism referral in the month that has been open for at least 13 weeks receiving a first appointment after more than 13 weeks
  • ASD19b - Proportion of patients with an open suspected autism referral in the month that has been open for at least 13 weeks that have not had a care contact appointment recorded
  • ASD19e - Proportion of patients aged 0 to 17 with an open suspected autism referral in the month that has been open for at least 13 weeks receiving a first appointment after more than 13 weeks
  • ASD19f - Proportion of patients aged 0 to 17 with an open suspected autism referral in the month that has been open for at least 13 weeks that have not had a care contact appointment recorded
  • ASD19g - Proportion of patients aged 18 and over with an open suspected autism referral in the month that has been open for at least 13 weeks receiving a first appointment after more than 13 weeks
  • ASD19h - Proportion of patients aged 18 and over with an open suspected autism referral in the month that has been open for at least 13 weeks that have not had a care contact appointment recorded

NHS England apologises for any inconvenience caused.

6 November 2024 09:30 AM

Mental Health Services Dataset (MHSDS) Version 6

The April 2024 to June 2024 reporting period figures are the first to be published using MHSDS v6. The implementation of MHSDS v6 includes a fundamental restructuring of the recording of key areas, although none that impact the Autism Waiting Times publication.

Full details of the major methodological changes made for this publication can be found here.

Figures should be interpreted with caution as Data Quality issues may be present in the data used to create the measures. Please see the 'Data Quality Comments' available from here which contains details of providers who have reported Data Quality issues.

8 August 2024 09:30 AM

Methodology

Analytical approach

There is one main approach to autism waiting time statistics published here, contributing to an overall picture of the experience of autism spectrum disorder (ASD) diagnostic pathways.

 

The analysis takes the latest record of all referrals where the reason for the referral is suspected autism. For each month in the reporting period, we look at whether the referral was new, open at any point or closed in the month.

Waiting time to care contact approach

For waiting times, we use the referrals for suspected autism which were open within the month. We then look at the date of the first attended care contact related to those referrals if one has occurred. The waiting time taken here is the time from initial referral to the first care contact.

 

As illustrated above, the waiting time (represented by the arrow) measured is the time between the initial referral date, coded as suspected autism, to the date of the first attended care contact (appointment) for that referral or end of the month where no contact had been made.

More detailed descriptions of the analysis undertaken can be found on the construction page of this publication, found here.


These statistics are based on the information collected from the Mental Health Services Dataset. Further detail on the information captured within the Mental Health Services Dataset (MHSDS) is available here.


Access the code used to create this report

From September 2023, the code used to create the outputs for this report is available on our NHS Digital GitHub webpage.

Click here to access the code


Last edited: 13 November 2024 5:08 pm