Appendix B Consultation methods

Consultation for the 2022 National Study of Health and Wellbeing, also known as the Adult Psychiatric Morbidity Survey (APMS)

A survey of the mental health of the general population in England was carried out in 1993, 2000, 2007 and 2014.  The next survey in the series goes into field in 2022. It is hoped that interviewing face-to-face in people’s home will be possible then: this leads to higher quality data and provides the consistency in methods needed to monitor change in England’s mental health. The COVID-19 context will be monitored closely. The survey is led by NHS Digital, funded by the Department for Health and Social Care, and conducted by the National Centre for Social Research (NatCen) and University of Leicester.  Following each survey an official statistics report is published along with data tables. A survey dataset is also created and archived with the UK Data Service.

This consultation builds on a previous one carried out in 2016 and is intended to inform the content of the upcoming survey. You can answer as many questions as you like; open text boxes are provided in case you prefer to provide a written response. You can provide contact details or you can compete this anonymously.

This consultation is being carried out by NatCen. The findings will be used to draft a report and provide recommendations for the 2022 survey. The report will include a list of the organisations that participated (where details are provided). Individuals will not be named, although quotes may be taken from the open text boxes. The report may be published by NHS Digital.

The first set of questions are about you.

ASK ALL

WHO1

Are you responding as an individual or on behalf of an organisation or group?

SINGLE CODE

1. Individual
2. Organisation
3. Group (for example  a consortium or network)

IF WHO1 = 2,3

WHO4

What is the name of organisation where you work?

Participating organisations will be listed in the consultation report. Leave this blank if you do not want your organisation to be named.

[OPEN]

ASK ALL

WHO2

Are you responding in your capacity as someone:

MULTICODE

1. with lived experience of mental health issues
2. in policy or planning
3. in research or education
4. in a campaign role
5. in health or other service provision
6. as a member of the public
7. Other [please enter]

IF WHO2 =2,3,4,5 THEN

WHO3

Do you work in:

MULTICODE

1. Third sector/voluntary/campaign organisation
2. Local government
3. Central government
4. University or research institution
5. Health and social services
6. Other [PLEASE ENTER]
7. N/A

The next questions are about your experience of the survey series or how you think it could be used.

ASK ALL

HEARD

Before this consultation, had you come across the survey series before (either as the Adult Psychiatric Morbidity Survey of the National Study of health and wellbeing?   

SINGLE CODE

1. Yes
2. No
3. Not sure

IF HEARD=1, 3, Prefer not to answer

USED

Have you used published reports and data tables, journal papers or other results, or the archived dataset from this survey series?

MULTICODE

1. No
2. Yes, used published reports, data tables and/or journal papers
3. Yes, involved with publications using data
4. Yes, analysed the archived data

ASK ALL

VALUE

If the survey data or results helped you, can you say what about it has been helpful?

If you haven’t used it before, what do you think would be useful about a survey like this?

[OPEN]

ASK ALL

NVALUE

If the data and/or results have had limitations, can you say what the limitations were?

If you haven’t used it before, what do you think might be the limitations of a survey like this?

[OPEN}

2022 survey content

The main aims of the survey series are to monitor

• prevalence and change in prevalence of mental health conditions
• inequalities in who experiences mental health conditions
• access to social support and use of treatment or services
• inequalities in access to social support, treatment or services

Core content remains consistent across waves and includes a range of mental health conditions depression and anxiety.  For a list of topics (see 'Topics from the 2014 questionnaire') covered in the 2014 survey and for the phase one 2014 questionnaire. Core content takes over an hour to administer. Space for additional content needs to come from cutting existing topics and items. 

ASK ALL

ADD

Some topics that were not in the 2014 survey have been identified for inclusion.

Please select your 5 top priority topics from this list to include in the 2022 survey.

SINGLE RESPONSE GRID

Top 5 priority (select 5 only)

• COVID-19 infection and isolation experiences
• Eating disorders (last covered in 2007)
• Problem gambling (last covered in 2007)
• Gender identity
• Physical activity
• Diet
• Self-reported height and weight
• Access to green space
• Personality and positive psychology
• Social media
• Online self-prescribing
• New psychoactive substances
• Nicotine products and e-cigarettes
• Premenstrual Dysphoric Disorder/ 'severe PMT'
• Remote/online health service contact
• Employment contracts
• Body dysmorphic disorder
• Hoarding disorder
• Excoriation disorder
• Gaming disorder
• Intermittent explosive disorder
• Olfactory reference disorder
• Prolonged grief disorder
• Catatonia
• Self-esteem
• Social prescribing
• Health care: access, delays and waiting lists
• Perinatal mental health and parenting

ASK ALL

ADDX

Which measures or questions you would recommend be used to measure your top priority topics?

Add references or links if you have them. Given pressure on space, shorter items have more increased chance of inclusion.

[OPEN]

 

ASK ALL

ADDOTH

What other new topics or measures would you like to see added to the 2022 survey and why?

Click for a reminder of topics (see 'Topics from 2014 questionnaire') asked last time.

[OPEN]

 

ASK ALL

REDUCv2

Space for new content must come from cutting items and topics from the 2014 questionnaire.  

Please select your top 5 topics to be cut from the new questionnaire.

This list is based on assumptions on what we think from 2014 is the lowest priority to repeat.

SINGLE RESPONSE GRID

Top 5 to cut

• Menopause
• verbal fluency (animal naming exercise)
• learning impairments
• sensory impairments
• social capital and participation
• caring responsibilities
• parenting
• sexual behaviour
• religion and spirituality
• childhood neglect

ASK ALL

REDUCOTH

Are there any other existing topics from the 2014 questionnaire that you think could be cut to make room for new topics?

Click for a reminder of existing topics (see 'Topics from 2014 questionnaire').

[OPEN}

ASK ALL

CHANGE

Are there existing topics you would like to see expanded, changed, or administered differently to before?

For example, adapting the ‘work stress’ questions to focus on different post-COVID-19 modes of working, or the debt questions to cover current payday loan companies, or amending the measure used to identify problems with alcohol.

[OPEN]

ASK ALL

BOOSTv2

if it is possible to boost the sample, please select your top 3 priority groups to boost from the options below. 

SINGLE RESPONSE GRID

• people from minority ethnic groups
• younger people , age 16 -24
• learning impairments
• sensory impairments
• people living in more deprived neighbourhoods
• specific regions in England
• other UK countries
• larger overall sample
• qualitative research
• extension to include people with moderate to profound learning impairment

ASK ALL

OUTPUTv2

For the 2014 survey, a large, summary report was available, as well as the separate chapters and Excel data tables. Alternatively, a series of short chapter reports, infographics, or dashboards could be produced.

Which would you find more useful?

MULTICODE

1. large report

2. Short chapter reports

3. Infographics

4. Dashboards

5. Dataset

6. Data tables

7. Other format (please write in).

ASK ALL 

OTHERSugg

Please tell us any other suggestion that you have. This could be about survey content, sample, fieldwork, reporting, data access, or anything else.

[OPEN]

ASK ALL

INFORM1

Thank you for your feedback on how to improve the survey.

If you are happy for us to contact you for further information on your answers please provide your name:

[OPEN]

ASK ALL

INFORM2

And your email:

[OPEN]

End page script:

Thank you very much for completing this survey. Your contribution will be very valuable in helping to shape the 2022 APMS.

If you have any further questions or comment please email NatCen at [email protected].

Introduce lead and co-moderator, and roles

NatCen are conducting this independent consultation on behalf of NHS Digital and their project partner University of Leicester.

This consultation is about the 2022 National Study of Health and Wellbeing, also known as the Adult Psychiatric Morbidity Survey or APMS. The main aims of the survey series are to monitor

• prevalence and change in prevalence of mental health conditions
• inequalities in who experiences mental health conditions
• access to social support and use of treatment
• inequalities in access to social support or treatment

A survey of the mental health of the general population in England and has been carried out in 1993, 2000, 2007, and 2014. The next survey in the series goes into field in 2022. It is hoped that interviewing face-to-face in people’s home will be possible then: this leads to higher quality data and provides the consistency in methods needed to monitor change in England’s mental health.

This consultation builds on a previous one carried out in 2016 and is intended to inform the content of the upcoming survey.

The discussion will last approximately 90 minutes. We will focus on:

• your experiences of the survey series data / results
• survey topics to include, remove or change and reasons for this
• Survey outputs that would be helpful for end users  

There are no right or wrong answers; we are interested in hearing your views. We don’t expect everyone to agree, but we ask you to be respectful to one another and let everyone have their say.

Participation is voluntary. We’d like you to be honest. You can skip questions or stop taking part at any time. You can use the speech function or type if you prefer.

With your permission we would like to audio-record the discussion to have an accurate record of what is said.

If you have technical issues please email [email protected] or call 0207 549 7031.

Data will be anonymised and stored securely. Only the research team will have access to recordings.

The recordings will be transcribed verbatim. Upon completion of the project, NatCen will securely delete all project data that we hold.

The discussion we have will be used to produce a report on recommendations for the 2022 survey. The report will not identify any individual that took part, but with your permission we would like to include a list of organisations in the report. We will do our best to protect your anonymity, but as we are consulting with only a small number of people in specific job roles, there is a limit to the anonymity we can promise.  

Any questions?

Introductions [5 min]

Aim: Warm up, everyone introduces them self

• members to introduce themselves
• area of expertise + organisation

Previous use of the survey results/data [15 min]

Aim: To start with an understanding of how participants use previous survey results / data .

If they haven’t used APMS, invite discussion about use of health survey data more generally.

Explore if they had come across this survey series (either as the ‘Adult Psychiatric Morbidity Survey’ or the ‘National Study of Health and Wellbeing’).

How they come across it.  

• published results
• used the data

Map what sorts of things have they used it for

• explore what has been useful about the results/ data
• explore results / data limitations 

2022 survey content [45 mins]

Aim: Seek views on what content to add, remove, change and why

Moderator explanation: Core content remains consistent across waves and includes a range of mental health conditions depression and anxiety. Share slide 1 with a list of topics covered in the 2014 survey. Core content takes over an hour to administer. Space for additional content needs to come from cutting existing topics and items.

Topics to add 

Ask openly first, then show slide

Ask participants to prioritise topics to add [show slide 2]

• reasons why to add or not to add
• how they or others might use this data
• explore consensus and differences  

Topics to remove

Ask participants to prioritise topics to add [show slide 3]

• reasons why to remove or keep
• how they or others might use this data
• explore consensus and differences 

Topics to change

Ask participants to prioritise if any core questions should be expanded, changed or administered differently. [Show slide 1]

• What should change and how
• how they or others might use this data
• explore consensus and differences

[Optional 5 min break]

Sample/boosts [5 minutes] 

Aim: Seek views on suggested sample boosts

Ask participants to prioritise possible sample boost options [Show slide 5]

• reasons why to boost
• explore consensus and differences

Outputs [5 mins]

Aim: Seek views on preferred outputs

Ask participants to discuss preferred outputs:

• Long report
• Short chapter reports
• Webpages
• Access to datasets

Explore reasons why

• how they/others might help them to use this data
• explore consensus and differences

Any other comments [5 mins]

Ask participants for any other suggestions that they have.

• survey content
• sample
• fieldwork
• reporting
• data access
• anything else

Turn off recorder

• thank them for their time and for the helpful discussion. Stress the value of discussion in helping to shape the 2022 survey.
• email NatCen ([email protected]) if there is anything which they would not like to be included in the write up of the findings
• remind them about consultation survey, live until 7 June, share widely please.

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Appendix A