For example, months before we announced our intention to host a new artificial intelligence lab, our code of conduct for artificial intelligence and other data-driven technologies made clear our expectation that technology companies meet a gold-standard set of principles to protect patient data.
We are the first country in the world to do this and our code of conduct has been drawn up with the help of industry, academics and patient groups and will be continually reviewed and evolved as the landscape changes.
NHS England and the independent group Understanding Patient Data (hosted by the Wellcome Trust) are currently undertaking citizen’s juries and wider deliberation on the question: “what constitutes a fair partnership between the NHS and researchers, charities and industry on uses of NHS data (patient and operational)?”. Read more about citizen juries.
By testing different commercial models against the principles on which our citizens are not prepared to compromise, we hope to reach a consensus on what good looks like and how best we achieve the promised benefits.
Our shared goal, working with partners across the healthcare system, is to improve outcomes for patients, make the NHS more efficient and cost effective, and contribute to making the UK home to the latest data-driven scientific advances in healthcare.
NHSX is committed to hosting a Centre of Expertise, which will provide specialist commercial and legal advice to NHS organisations entering data agreements. This Centre will develop standard contracts and guidance, and ensure that the advantages of scale in the NHS can deliver benefits for patients and the NHS.
Better use of data between the NHS and others has the potential to transform healthcare. NHS and care organisations have an obligation to protect patient data, but in my view, they also have the obligation to make best use of it. Collaborations need to benefit everyone involved – patient lives are at stake.
We are committed to making the NHS and the UK world leaders in data driven healthcare and applaud today’s news that will be part of turning this ambition into reality.