NHS Digital has been asked to identify people who are eligible and to invite them to join the Our Future Health research programme. We will use the data we hold to identify suitable people and send them an invitation to take part. The data used will include name, date of birth, address, and NHS number. Your personal data will not be shared directly with the research programme.
The research programme has requested that all eligible people be contacted once only. To manage the invitation process, we will need to keep the list of people who have been invited until six months after the research programme recruitment is complete. This is to ensure that you are not invited if you have told us you do not want to be contacted, and that no one is invited more than once.
After this time, all the information stored for the purpose of this research programme will be deleted. You can find out more about your choices on how the NHS uses your data for research and planning.
We will use your data to produce summary reports to monitor recruitment into the research programme (for example how many people were invited). These reports will not identify you personally.
As an executive non-departmental body reporting to the Department of Health and Social Care most of our processing activity is directed by the Secretary of State for Health and Social Care. NHS Digital is Directed under the Pilot NHS DigiTrials Recruitment Support Services Directions 2021 to process data to identify potentially eligible participants to take part in the programme.
Additionally, the Health Research Authority has provided legal support to the Our Future Health research programme under Section 251 of the NHS Act 2006 and Regulation 5 of The Health Service (Control of Patient Information) Regulations 2002 which enable the common law duty of confidentiality to be temporarily lifted so that confidential patient information can be processed by NHS Digital on behalf of the programme. This support provides the legal basis for suitable participants to be invited to join the research programme. This is following advice from the Confidentiality Advisory Group, an advisory body which provides independent expert advice on the use of confidential patient information without consent in England and Wales.
If you have requested that your NHS data is not shared for research and planning purposes (by registering a National Data Opt-out) then you will not receive an invitation for this research programme.
If you decide to take part, you will be asked to provide consent to the research programme via a website.