This management information publication reports on patient opt-out information that has been received from GP practices, as of June 2018.
There has been a larger than usual increase in patients with a registered type 2 opt-outs in this quarter. This is due to a reporting issue with a GP system suppler.
Patients who have registered a type 2 opt-out in TPP practices (SystmOne) have not had those opt outs subsequently sent to NHS Digital, due to a coding error by TPP. This error has affected up to around 150,000 patients, about 10% of the total number of opt-outs.
Patients are affected if they registered a type 2 opt-out in a GP practice using SystmOne, after 31 March 2015.
These patients are now included in these results. In previous months they have not been included.
For more information on this please see https://digital.nhs.uk/services/gp-systems-of-choice/tpp-type-2-issue/content
National Data Opt-out
The national data opt-out was introduced on 25th May 2018, and will replace the type 2 opt-out. It prevents confidential patient information from being disclosed except for purposes of individual care across the health and care system in England. Existing type 2 opt-outs have automatically been converted to national data opt-outs. Any new type 2 opt-outs set until 1 October 2018 will continue to be collected on a monthly basis, and converted to national data opt-outs.
Information on numbers of national data out-outs set can be found here. Please note that some of these national data opt outs involve citizens re-stating their previous preference, so it cannot simply be added to the type 2 figure.
Now that the national data opt-out has been introduced, this is the last release of type 2 opt-out management information in this form. Subsequent releases of management information will be based on the number of national data opt outs in place, combining type 2 information sourced from GP systems with preferences expressed via the national data opt out to give a single de-duplicated figure. These releases will initially be on a monthly basis and provide a single figure for this and the release will be developed in line with user need.
Type 1 and Type 2 Opt-outs
A type 1 opt-out prevents information being shared outside a GP practice for purposes other than direct care.
A type 2 opt-out prevents information being shared outside of NHS Digital for purposes beyond the individual's direct care. A more detailed description of opt-outs is available here https://digital.nhs.uk/about-nhs-digital/our-work/keeping-patient-data-safe/how-we-look-after-your-health-and-care-information/your-information-choices/opting-out-of-sharing-your-confidential-patient-information
Type 1 and type 2 opts-outs are presented at GP practice level.
Type 1 opt-outs are reported as instances (i.e. number of times the opt-out code occurs within GP records, which may include the same patient recorded at more than one practice) and there is no way to de-duplicate this information.
Levels of type 1 opt-outs are therefore likely to be higher than levels of type 2 opt-outs, which are de-duplicated.