National Cancer Registration Dataset
Summary
Why and how we process your data in the National Cancer Registration Dataset and your rights.
| Controller | NHS England |
| How we use the information (processing activities) | This dataset is used to monitor cancer rates, improve cancer care and support cancer-related research projects. |
| Does this contain sensitive (special category) data such as health information? | Yes |
| Who are recipients of this data? |
External users as permitted through Data Sharing Agreements (DSA) via the Data Access Request Service (DARS) - see the data release register for more details. |
| Is data transferred outside the UK? | This data is not transferred out of the UK |
| How long the data is kept | The data will be kept for as long as NHS Digital is directed to operate the COVID-19 Public Health NHS England Information Systems and undertake the system delivery functions. The expected end date is currently 31 March 2021, unless revoked earlier or replaced by a further direction. |
| Our lawful basis for holding this data | Legal obligation |
| Your rights |
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| How can you withdraw your consent? |
Consent is not the basis for processing. |
| Where does this data come from? | The National Cancer Registration and Analysis Service (NCRAS), part of NHSE, is the population-based cancer registry for England. It collects, quality assures and analyses data on all people living in England who are diagnosed with malignant and pre-malignant neoplasms, with national coverage since 1971. It produces the national cancer registration dataset for England. The primary role of NCRAS is to provide near real-time, cost-effective, comprehensive data collection and quality assurance over the entire cancer care pathway. To achieve this, it receives data from across the National Health Service (NHS). For further information, see: https://academic.oup.com/ije/article/49/1/16/5476570. |
| The legal basis for collecting this data | GDPR: |