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Shielded Patient List - Cancer and Rare Diseases Data
Data Provision Notice to provide NHS Digital with cancer and rare diseases data from Public Health England. This is to improve the identification of patients who may be clinically extremely vulnerable if they contract COVID-19, and determine whether those patients should be added to the Shielded Patient List.
Page contents
Overview
The objective of this collection, which requires the submission of cancer and rare diseases data from Public Health England (PHE), is to improve the identification of patients who may be clinically extremely vulnerable if they contract COVID-19, by using more accurate clinical data sets linked with the existing data. It will allow NHS Digital to assess whether additional patients should be added to the Shielded Patient List.
Update: 23 November 2020: The Data Provision Notice has been revised to clarify that data about deceased patients is not included.
Scope of the collection
This Notice is served on:
- Public Health England
in respect of the following data:
- Cancer Registry
- Radiotherapy
- Systemic Anti-Cancer Therapy
- Proxy Cancer Registrations
- Rare Diseases
- Congenital Anomalies.
Legal basis for provision of data
NHS Digital has been directed by the Secretary of State under section 254 of the Act to establish and operate a system for the collection and analysis of the information specified for this service.
Period of the collection
The period for the collections will be:
| Data Set | Period |
| Cancer Registry | Historic data (Fixed Annual snapshot) – One-off plus occasional ad-hoc transfer if patient opt-outs need to be applied Prospective data - monthly until further notice |
| Radiotherapy | Historic data (Fixed Annual snapshot) – One-off plus occasional ad-hoc transfer if patient opt-outs need to be applied Prospective data - monthly until further notice |
| Systemic Anti-Cancer Therapy | Historic data (Fixed Annual snapshot) – One-off plus occasional ad-hoc transfer if patient opt-outs need to be applied Prospective data - monthly until further notice |
| Proxy Cancer Registrations | Prospective data – monthly until further notice |
| Rare Diseases | One-off collection |
| Congenital Anomalies | One-off collection |
Read the Data Provision Notice
Last edited: 23 November 2020 6:10 pm