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Programmes to which the National Data Opt-Out should not be applied

The table contains a list of programmes with section 251 approval to which the National Data Opt-Out (NDOO) should not be applied.  

The table is subject to change so please ensure you are using the most up-to-date version. The organisation requesting data can also confirm whether the National Data Opt-Out applies.

Programme name Programme type Confidentiality Advisory Group (CAG) number Reason NDOO does not apply
National Cardiac Audit Programme Clinical audit

22/CAG/0014 (previously 17/CAG/0071) (NHS England (NICOR) National Cardiac Audit Programme (NCAP))

22/CAG/0016 (previously 17/CAG/0152) (TAVI)

Exemption by the Secretary of State following advice from the Confidentiality Advisory Group (CAG)

Intensive Care National Audit and Research Centre (ICNARC)  Clinical audit

Case Mix Programme
PIAG 2-10(f)/2005 

National Cardiac Arrest Audit
ECC 2-06(n)/2009

Exemption by the Secretary of State following advice from the CAG

Exemption by the Secretary of State following advice from the CAG

National Hip Fracture Database Clinical audit CAG 8-03(PR11) 2013  Exemption by the Secretary of State following advice from the CAG
Maternal mortality surveillance and confidential enquiry - MBRRACE Clinical audit 15/CAG/0119  Exemption by the Secretary of State following advice from the CAG
National Perinatal Mortality Review Tool - PMRT National Registry 17/CAG/0150 Exemption by the Secretary of State following advice from the CAG
National Joint Registry National Registry 18/CAG/0146  Exemption by the Secretary of State following advice from the CAG
National Emergency Laparotomy Audit (NELA) Clinical audit CAG 5-07(d)/2013 Exemption by the Secretary of State following advice from the CAG
Paediatric Intensive Care Audit Network Database (PICANet) Clinical audit 21/CAG/0090 Exemption by the Secretary of State following advice from the CAG
National Neonatal Audit Programme (NNAP) Clinical audit 21/CAG/0007 Exemption by the Secretary of State following advice from the CAG
Out of Hospital Cardiac Arrest Outcomes (OHCAO) Registry National Registry 22/CAG/0087 Exemption by the Secretary of State following advice from the CAG
National Vascular Registry (NVR) National Registry CAG 5-07(f)/2013 Exemption by the Secretary of State following advice from the CAG
National Surveys National Surveys

Adult Inpatient Survey
19/CAG/0097 (activity under ‘s251’ support closed)
23/CAG/0165

Urgent and Emergency Care Survey
22/CAG/0107 (activity under ‘s251’ support closed)
23/CAG/0179

Maternity Survey
22/CAG/0016
23/CAG/0014

Community Mental Health Survey
21/CAG/0181 (activity under ‘s251’ support closed)
23/CAG/0059

National Cancer Patient Experience Survey 
22/CAG/0100

Children and Young People’s Patient Experience Survey
20/CAG/0145 (activity under ‘s251’ support closed)

Under 16 Cancer patient experience survey
20/CAG/0111

National Diabetes Experience Survey
23/CAG/0166

Integrated Care Experience Survey 
22/CAG/0131

Exemption following policy consideration
National Confidential Inquiry into Suicide and Safety in Mental Health - NCISH National Confidential Inquiry 23/CAG/0024  (previously PIAG 4-08 (d)/2003 Exemption by the secretary of State following advice from the CAG
NHSBT Potential Donor Audit Clinical audit PIAG 4-05 (e) 2008 Temporary disapplication of NDOO while policy postponement sought 
Invoice Validation for Controlled Environment for Finance Invoice Validation 

CAG 7-07(a)/2013

CAG 7-07(b)/2013

CAG 7-07(c)/2013

Exemption following policy consideration
Assuring Transformation Other

CAG 8-02(a)/2014

CAG 8-02(b)/2014

CAG 8-029(c)/2014

Exemption following policy consideration
National Drug and Alcohol Treatment Monitoring System (NDTMS) National Drug and Alcohol Treatment 21/CAG/0136  Exemption by the Secretary of State following advice from the CAG
Biliary Atresia Registry National Registry 21/CAG/0150 Exemption by the Secretary of State following advice from the CAG
National Bowel Cancer Audit (NBOCA) Clinical audit ECC 1-03(d)/2012 (activity under ‘s251’ support closed 31 December 2023) Exemption by the Secretary of State following advice from the CAG
National Oesophago-Gastric Cancer Audit (NOGCA) Clinical audit ECC 1-06(c)/2011 (activity under ‘s251’ support closed 31 December 2023) Exemption by the Secretary of State following advice from the CAG
Sentinel Stroke National Audit Programme National Registry National Registry 23/CAG/0031(previously ECC 6-02(FT3)/2012) Exemption by the Secretary of State following advice from the CAG
The Manchester Self Harm Project - MASH clinical audit Clinical audit 23/CAG/0079 (previously PIAG 2-07(c)/2004) Exemption by the Secretary of State following advice from the CAG
National Audit of Cardiac Rehabilitation (NACR) Clinical audit 23/CAG/0053 (previously ECC 3-04 (a)/2012 ) Exemption by the Secretary of State following advice from the CAG
Epilepsy12 Clinical audit 17/CAG/0184 Exemption by the Secretary of State following advice from the CAG

National Maternity and Perinatal Audit (NMPA)

Clinical audit

16/CAG/0058

Exemption by the Secretary of State following advice from the CAG
National Paediatric Diabetes Audit (NPDA) Clinical audit ECC 2-03(c)/2012 Exemption by the Secretary of State following advice from the CAG
UK Renal Registry (UKRR) (non-research) Clinical audit 16/CAG/0153 Exemption by the Secretary of State following advice from the CAG

NICOR Commissioning through Evaluation Registries/Audits (non-research):

  • Percutaneous Mitral Valve Repair
  • Left Atrial Appendage Occlusion
  • Patent Foramen Ovale Closure in Adults
Clinical audit 22/CAG/0117 Exemption by the Secretary of State following advice from the CAG
The Oxford Monitoring System for Attempted Suicide (OMSAS) Clinical audit 24/CAG/0001 (previously PIAG-2-07(b)/2004) Exemption by the Secretary of State following advice from the CAG
National Audit of Inpatient Falls (NAIF) Clinical audit 23/CAG/0038 Exemption by the Secretary of State following advice from the CAG

Last edited: 23 February 2024 8:31 am