This report records the key findings of a remote data sharing audit of the Intensive Care National Audit & Research Centre (ICNARC) between 18 and 22 October 2021. It provides an evaluation of how ICNARC conforms to the requirements of both:
- the data sharing framework contact (DSFC) CON-303700-Q1B6H v2.01
- the data sharing agreement (DSA) DARS-NIC-46844-W5V5G-v2.3
This DSA covers the provision of the following datasets:
||Classification of data
|Medical Research Information Service (MRIS) – Cohort Event Notification Report
||Nov 2017 – Jan 2018
|MRIS – Flagging Current Status Report
||Nov 2017 – Jan 2018
The Controller is ICNARC, and the Processors are Nasstar and Exponential-e (not named on the active DSA). Although Iron Mountain is also named as a Processor on the active DSA, the company is no longer being used and was therefore excluded from this audit.
Many critically ill patients suffer disturbing psychological symptoms, such as panic or hallucinations, during their stay in the intensive care unit. Doctors believe that these frightening experiences are caused by the effects of illness, drugs, stressful treatments such as being on a breathing machine (ventilator), and by the alien environment of the intensive care unit. There is now strong evidence that these stressful experiences may trigger longer-term psychological problems for patients, such as post-traumatic stress disorder, severe depression and anxiety. The POPPI (Provision of Psychological support to People in Intensive care) study seeks to establish if psychological training for nurses improves patients’ wellbeing after a stay in the intensive care unit. In this instance the mortality data supplied by NHS Digital was used to prevent correspondence being sent to a patient that had passed away. Currently the data is not being used as the study has finished.
This report also considers whether ICNARC conforms to its own policies, processes and procedures.
The interviews during the audit were conducted through video conferencing.
This is an exception report based on the criteria expressed in the NHS Digital Data Sharing Remote Audit Guide version 1.