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Data Access Request Service (DARS) guidance

Track your application via DARS online, book yourself onto a webinar and browse the application guidance catalogue.

Virtual data assistant (ViDA)

Use our virtual data assistant - a cognitive agent that can answer questions and provide information about data NHS Digital holds and about the DARS process.

 

Please note: ViDA is in beta which means that is the first version and we are still testing it. Some results might not be exactly as you expect.

Log in to DARS online

We've developed a range of materials to help you make the most of our Data Access Request Service (DARS).

Log in to DARS online 

Contact us

If you wish to discuss your requirements and to obtain a login, please email: enquiries@nhsdigital.nhs.uk

Standards of information expected in a data access application

NHS Digital has produced guidance on the information expected in the various sections of a DARS application, named ‘Standards’. For each ‘Standard’ there is written guidance covering important items to consider when writing your application and, where available, an accompanying video, both accessible via the table below.

Title/name of standard

Video available

Version

Last updated

Data Sharing Agreement Length

Yes

v1.0

24 July 2019

Data Controllers

Coming soon

v1.0

24 July 2019

Data Processors

Yes

v1.0

24 July 2019

Processing and Storage Locations

Coming soon

v1.0

24 July 2019

Security Assurance

Yes

v1.0

24 July 2019

Data Protection Act Registration

Yes

v1.0

24 July 2019

Data Minimisation

Yes

v1.0

24 July 2019

Patient Objections

Coming soon

v1.0

24 July 2019

Objective for Processing

Coming soon

v1.0

24 July 2019

Processing Activities 

Coming soon v1.0 14 August 2019 

Expected Outcomes   

Coming soon v1.0 14 August 2019 

Expected Measurable Benefits

Coming soon

v1.0

24 July 2019

Commercial Purpose

Coming soon

v1.0

24 July 2019

Special Conditions

Coming soon

v1.0

24 July 2019

Ethical Approval

Coming soon

v1.0

24 July 2019

Duty of Confidentiality

Coming soon v1.0 26 September 2019
GDPR Consent Coming soon v1.0 24 July 2019

Sub-Licencing and Onward Sharing

Coming soon

v1.0

24 July 2019

Transparency (fair processing)

Coming soon

v1.0

24 July 2019

Territory of Use

Coming soon

v1.0

24 July 2019

Videos

Find more information about DARS and how to use it by watching our guidance videos:

An introduction to the Data Access Request Service

 

 

How to make an application

 

 

DARS - guidance for local authorities

 

 

Data destruction

 

 

Guidance on applying for Emergency Care Data Set (ECDS) through DARS

Guidance on applying for Summary Hospital Mortality Indicators (SHMI) through DARS

View a transcript of this video

Slide 1 – Summary Hospital-level Mortality Indicator (SHMI) Webinar (Title Page)

Welcome to this webinar with Summary Hospital-level Mortality Indicator Data Set. 

My name is Emily Jackson and I'm a Senior Information Analyst at NHS Digital. I will be talking you through information on our available DARS product. 

Please view this webinar before making your DARS application.

Slide 2 - Summary Hospital-level Mortality Indicator (SHMI) – Overview

What is the Summary Hospital level Mortality Indicator, or SHMI?

SHMI compares the actual number of patients who died following hospitalization, with the number that would be expected to die on the basis of average England figures.

The calculations take into account the characteristics of a patient treated at different trusts such as their age, gender, condition they're in hospital for and underlying conditions they have.

It covers non-specialist acute NHS trusts and includes deaths which occurred either in hospital or within 30 days of discharge. 

Independent sector providers, specialist trusts, mental health trusts and community trusts are not included.

The SHMI gives an indication of whether a trusts mortality ratio is as expected, higher than expected or lower than expected. 

It is calculated using the Hospital Episode Statistics (HES) data for Inpatients, linked to Death Registrations data from the Office for National Statistics. 

The SHMI is published by NHS Digital as a National Statistic on a monthly basis.

Each publication reports on discharges within a 12 month period.

Slide 3 – Data Quality

Before requesting data, we recommend reviewing the data quality sections of our monthly publications which provide information on coverage and the accuracy and reliability of the data.

We also suggest reviewing the data quality information for the HES data and Death Registrations data which are used to create the SHMI data set.

Slide 4 – SHMI - product available through DARS

The SHMI data set may be useful to you if you have an interest in analysing mortality outcomes following hospitalization, or if you work with hospital trusts to investigate the SHMI data.

However members of staff requiring access to the SHMI data for their own trust, should apply to the SHMI extract service rather than the DARS service.

Further information on the SHMI extract service is available on the SHMI home page.
The SHMI dataset is a record level dataset, with some fields taken directly from the HES Inpatient data set, and other fields calculated specifically for inclusion in the SHMI dataset.

There is one record in the data set for each finished provider spell. This is a continuous period of time spent as a patient within a single trust. 

Slide 5 – SHMI – product available through DARS (continued)

The data set is pseudonymised, but does include unique fields such as the HES episode key (EPIKEY), which could potentially be used for linkage to other data sets, if the appropriate permissions are in place to allow this.

The SHMI dataset is used to produce a monthly National Statistics publication and is only released after the corresponding publication.

Each dataset covers discharges in a three-year period, and is derived using a combination of finalized and provisional HES data.

We publish on an approximate five month lag so, for example, data up to March 2019 would be available from mid-August.

When presenting or disseminating our data, we ask that you follow the same suppression rules that we use on our own publications.
This prevents the disclosure of identities or information about individuals. 

All counts, except those at a national level, are rounded to the nearest five, with any counts between one and seven inclusive replaced with an asterisk.

Full details of the SHMI suppression methodology are available on our website.

Slide 9 – Further reading and useful links

This slide contains useful links to further information on DARS and SHMI.

Please refer to these for more detailed information, such as guidance on the interpretation of the SHMI and full details of the methodology used to create the SHMI data set.

Slide 10 – Contact Us 

If you have any further questions please get in touch at data.applications@nhsdigital.nhs.uk.

Thank you for listening.

Guidance on applying for Community Services Data Set (CSDS) through DARS

 

View a transcript of this video

Slide 1 – Community Services Data Set Webinar (title page)

Hello, welcome to this webinar on the Community Services Data Set.

My name is Helen Nunn and I'm a Principal Information Analyst at NHS Digital.

I will be talking you through information on our available DARS product, please view this webinar before making your DARS application.

Slide 2 - Community Services Data Set (CSDS) - overview

What is the Community Services Data Set?

The Community Services Data Set, or CSDS, is a patient level data set providing information relating to publicly funded Community Services for all ages.

These Services can include health centres, schools, district nursing, health visiting and many more.

These services are legally mandated to collect and submit community health data, as set out by the Health and Social Care Act 2012.

Data is used to commission services to improve health, reduce inequalities and support service improvement in clinical quality.  

The CSDS is an update to the previous Children and Young People's Health Services, or CYPHS dataset, which collected data on NHS funded services for children only.

The data now relates to all ages, and all services, which are publicly funded.

Slide 3 – Data Quality

Before requesting data, we recommend viewing the data quality sections of our monthly publications.

This will give an indication on the coverage, or validity of tables and fields you may want to access.

Work is ongoing to increase submissions and improve quality and recent data will likely be more complete than that published a year ago.

Slide 4 - Community Services Data Set (CSDS) – product available through DARS

The CSDS may be useful to you if you have a general interest in community services or a specific service area.

We anticipate this will primarily be useful for reporting requirements.

The CSDS contains a range of data which is submitted to NHS Digital in a complex and relational data model.

The DARS product is a simplified flattened version of the original submission structure, making it easier to manage.

The simplified structure flattens the 33 relational tables into eight optional data groups to reduce the level of linkage and transformation required locally.

Slide 5 – CSDS – product available through DARS (continued)

The main group, ‘Demographics and Referrals’, contains all tables that can be appropriately flattened into a single record, based on one record per referral, per person, per provider.

The additional seven groups for which data cannot be flattened, are ‘Care Activities’, ‘Group Sessions’, ‘Onward Referrals’, ‘Referral to Treatment pathways’, ‘Diagnoses’, ‘Immunisations’ and ‘Coded Scored Assessments’.

Slide 6 - CSDS – product available through DARS (continued)

Groups and fields are selected when applying for the product.

When multiple groups are required to be linked together, then do ensure you have requested sufficient linkage fields.

For example the ‘Unique CSDS ID’ for the patient, and ‘Unique Service Request Identifier’, are present in all seven patient level groups, and link each group back to the ‘Demographics and Referral’ group.

‘Unique Care Activity Identifier’ can be used in conjunction with the above two fields to link ‘Care Activities’ and ‘Coded Scored Assessments’.

The ‘Group Sessions’ cannot be linked to the rest of the data set at patient level.

The data is record level and pseudonymised, though identifiable data can be requested.

Extracts are final and not subject to further refresh.

Slide 7 – CSDS – product available through DARS (continued)

It is possible to link CSDS data to other NHS Digital datasets.

Community Services data is available from September 2015 onwards.

Data up to, and including September 2017, is from the Children and Young People's Health Services Data Set, which is NHS funded, for children only.

October 2017 onwards, is from the Community Services Data Set, so includes publicly funded community services for all ages.

Fields are available as monthly or quarterly cumulative extracts.

Also Yearly extracts, for the financial year April to March, are available.

CSDS data is used to produce a monthly statistical publication, so data will not be available to request until after it has been published.

We publish on an approximate four-month lag so, for example, April data would be available from mid-August.

Slide 8 – Community Services Data Set (CSDS) – product available through DARS (continued)

When presenting or disseminating our data, we ask that you follow the suppression rules we use on our own publications. This prevents disclosure of identities or information about service users.

All figures for all organizations which submitted, must be rounded to the nearest 5.

Any figures between 0 & 4, and all percentages calculated from values between 0 & 4, must be suppressed with an asterisk.

Percentages must be displayed to the nearest whole percent.

National totals do not need to be suppressed.

Slide 9 – Further reading and useful links

This slide contains useful links to further information on DARS and the CSDS.

Please feel free to have a read at your leisure.

Slide 10 – contact us

If you have any further questions, please contact data.applications@nhsdigital.nhs.uk.

Thank you for listening.

Agreement breaches

All organisations that gain approval to receive data from NHS Digital are subject to the terms set out within a specific Data Sharing Agreement (DSA) and the Data Sharing Framework Contract (DSFC). There may be an occasion when an organisation believes that they have not acted in accordance with these terms. In these circumstances it is important that the organisation acts immediately, to firstly control/stop the activity and then to contact the Data Access Request Service. NHS Digital will provide a confirmation receipt of this contact, so if you do not receive one please contact DARS directly (as per section 4.1.8 of the DSFC). You may also be required to undertake additional actions as outlined within the Data Security Protection Toolkit (DSPT).

In such circumstances NHS Digital will look to establish the details of what has happened, whether this constitutes a breach of agreement, the level of seriousness and what actions should be taken.

Ultimately a breach of the agreement(s) could result in the need to destroy the data held and the termination of the DSA and the DSFC. This is clearly a position that all would wish to avoid, and DARS are keen to work with organisations to ensure they fully understand and meet their obligations.

Please note that an organisation also has obligations to notify the Information Commissioners Office (ICO) in specific circumstances. Notifying NHS Digital does not remove those obligations which exist separately and must be complied with.

Webinars

Find out how to make the most of DARS with our webinars.

CCGs – using DARS online for data sharing for commissioning

Related pages

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    DARS: online fair processing

    Where your application involves personal data, then it is a legal requirement under the Data Protection Act (first principle) that personal data must be processed fairly and lawfully.

Last edited: 26 September 2019 1:47 pm