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Digital

National Disease Registration Services: Dissemination: GDPR information

Summary

How and why NHS Digital collects, analyses and shares National Disease Registries data. 

Controller NHS Digital
How we use the information (processing activities)

The National Disease Registration Service (NDRS) collects data on patients with or at risk of cancer, a congenital anomaly or rare disease. The data is used by NHS clinical teams to help plan and improve treatments and healthcare in England. It also helps academics and charities with research and policy making.

More information about NDRS can be found at www.ndrs.nhs.uk.
Does this contain sensitive (special category) data such as health information? Yes
Is data transferred outside the UK? he National Disease Registration Service only stores and processes data within the United Kingdom (UK).
How long the data is kept The NDRS will keep patient data for as long as it is necessary for the purposes outlined above in accordance with the Records Management Code of Practice 2021 and our Records Management Policy. Other organisations we share your personal data with must only keep it for as long as is necessary and as set out in their Data Sharing Agreement. Information about this will be provided in their privacy notices on their websites.
Our lawful basis for holding this data Public task
Your rights
  • Tick Be informed
  • Tick Get access to it
  • Tick Rectify or change it
  • Tick Erase or remove it
  • Tick Restrict or stop processing it
  • Cross Move, copy or transfer it
  • Tick Object to it being processed or used
  • Tick Know if a decision was made by a computer rather than a person
How can you withdraw your consent?

To discuss your rights on withdrawing consent or opting out of the data you can email our customer service centre or call us on 0300 303 5678.

Where we use this data