The Terms of Reference define the PPECAP’s role, membership and operating model.
The Terms of Reference are reviewed on a quarterly basis as a minimum, or as triggered by any major changes to ensure they are fit for purpose. Over the course of the programme, it is expected some changes may be made.
A formal review of the Terms of Reference was undertaken in January 2022 to ensure the group is delivering for its members against the stated purpose of supporting the proper implementation of the GPDPR programme. The content has been updated accordingly and revalidated with members.
Aims and objectives of the Panel
- To act as advisors and consultants on the development and implementation of the four phases of the communication and engagement strategy.
- To advise on who, how and when to engage patients and the public, to help shape the emerging communications content.
- To ensure that all communications content, materials, and activities are informed by patient and public views during development, in order to build trust in the use of patient data.
The panel will play a vital role in all editorial activities necessary to support GPDPR. It will support the development of credible and accessible materials, by:
- co-creating, reviewing, and providing patient and public perspective to all content produced by the wider NHS and NHS Digital to support the public communication and implementation of the GPDPR collection
- giving guidance to those teams developing the materials, and advising where additional content and/or materials may be necessary
- representing the views as patients and members of the public, as well as parent organisations (where relevant) in providing assurance and approval of materials
- being confident that the content provided in materials has been through sufficient review and rigour, to ensure the content is accurate and responds to concerns and challenges raised during testing, by wider stakeholders and by the panel
- ensuring that approved policy and programme decisions are incorporated clearly and accurately into the materials
- challenging where specific content is thought to be inaccurate or misleading
- reviewing the materials for plain English, checking for consistency in language, clarity, and ease of understanding for external lay/non-expert audiences
- ensuring that materials comply with accessible formats, in line with the approach agreed with accessibility groups
- acting as an escalation route, for questions and possible issues raised through the materials drafting and review stages
The panel will review a range of materials and collateral from different sources to include:
- communications content to support engagement activities
- communications content to support the public information drive
- accessibility materials to support the public information campaign including information in different formats and languages
All group members will have authority and responsibility to suggest topics for discussion, changes to group membership, and or any area of improvement. The group structures and processes will be kept under regular review, and amended through group consensus to maximise the effective functioning of the group.