The past, present and future of healthcare data innovations

By Prof Daniel Ray

 

Daniel Ray wearing a suit standing in front of brickwork office building

I cannot help but turn to the Hospital Episodes Statistics (HES) when I look at how data played a part in shaping the NHS since it was first founded in 1948. There is no disputing the power of HES as its sheer volume and depth is phenomenal.

These figures have been carefully collated and analysed since they first came into being in the 1980s and 1990s.  HES is now one of the key buttresses in the NHS system and very much deserve to be celebrated in the lead-up to the NHS’s 70th birthday.

HES records every single admission to hospital, every attendance at accident and emergency and all outpatient appointments at NHS hospitals in England. It also includes private patients who are treated in NHS hospitals and care delivered in treatment centres including those in the dependent sector but still funded by the NHS.

The data, which reveals trends and patterns in NHS hospital activity, is used for research and for planning health services. Disclosure control is strict so that patients’ confidentiality is always maintained.

The fact that hospitals got paid for specific numbers of patients treated through payment by results from 2004 onwards future-proofed the data, improving accuracy and quality.

A second significant step in boosting democracy and arming people’s ability to make their own decisions – something virtually unheard of seventy years ago – is, in my opinion, the transparency of data relating to how hospitals are performing. Patients can now visualise and understand outcomes of treatment so they can make an informed decision as to which hospital they want to be treated in.

Hospital ratings were introduced over the last 20 years probably initially by the healthcare commission in the 2000s and they work in a similar way that Ofsted reports do for schools.

I would say the third significant impact of data over the past decades – which has taken place much more recently – is the introduction of electronic patient records which means a patient’s journey in the health system is more accurately recorded and easily accessed. The patient therefore can be given more effective care by having a digitised record.

This process began nearly 20 years ago but some hospitals have been able to make more progress on this than others. Obviously, sources of funding such as the Global Digital Exemplar programme has enabled this process to progress more quickly and we would like to see all hospitals digitised as soon as possible

Global Digital Exemplars are internationally recognised NHS providers of exceptional care who share their learning and experiences to enable trusts to follow in their footsteps as quickly and as effectively as possible.

Looking ahead, the future of how data is going to inform research and decision-making is very interesting with new technologies on the horizon such as AI. It is really important that new laws such as GDPR are respected so that we can continue to utilise data by maintaining patient trust. I am really hoping that we can continue to use the data about people’s diagnosis and treatment to the same extent as we have done before because the volume, depth and quality of data is vital for research purposes.

Artificial intelligence is of course the second major factor in influencing the future course of the NHS.  There are some amazing developments in AI that will support and potentially replace in some areas humans’ ability to detect conditions.

Currently we are building an avatar here in NHS Digital that will improve data access.

It will enable us to store more data, safely and securely for research. There is no doubt in my mind that we need to provide access to data more quickly and in new and innovative ways.

Finally, I would say that as health care is becoming more integrated – with social care for example – then the use of data becomes ever more essential. Social care is becoming one of the greatest issues of modern society. It impacts on hospital care and it impacts on individuals and families in a major way. Again, data will lead the way as to how we can tackle these issues which are not going to go away any time soon.