Introduction
This privacy statement relates to services provided by NHS England.
This is a privacy statement for the NHS e-Referral Service user survey for use by patients and patient representatives that have used the Manage Your Referral website for booking, cancelling or rearranging their health and social care appointments.
This privacy statement is also for patients and patient representatives that choose to take part in the NHS e-Referral Service patient-user research panel. As a research panel member, you will have the opportunity to take part in online surveys, one-to-one interviews, web usability tests and discussion groups. We may follow up with you to ask about how your referral experience was including attending your appointment.
The NHS e-Referral service user research team understands your needs as an individual to ensure that your data is being used and held in a responsible way and we aim to reassure you that every reasonable step is being taken to secure your personal information.
Please ensure that you read this statement carefully and contact the NHS e-Referral Service programme team at [email protected] if you have any questions or concerns relating to this privacy statement.
This privacy statement explains the following:
- who we are
- what information we collect
- how we use your information
- what legal basis we have for processing your personal data
- when we share your personal data
- where we store and process personal data
- how we secure personal data
- how long we keep personal data for
- your rights in relation to personal data
- how to contact us
When we share your personal data
For members of the patient-user research panel, we may request to share your details with other research teams within NHS England, if we feel that you would be a suitable candidate for their user research. Details would only be shared with authorised members of the NHS England research team, but only with your permission.
We will not:
- share your information with any other organisations for marketing, research or commercial purposes - we will not pass on your information to any organisation outside of NHS Digital
- identify you personally in any findings or reports
The results of the surveys may be published by NHS England to support NHS services to improve how referrals are managed. Published results will remain anonymous - nobody will be able to identify you in any results.
How we secure personal data
We take the security of your personal information seriously. We have set up security measures, policies, and procedures, such as:
- all our survey data is stored securely in line with the General Data Protection Regulations
- only allowing access to survey data to specific NHS England staff
- compulsory information governance training completed every year for all NHS England staff members and contractors.
While in transit, the information you share with us by completing a survey is done so using a secure, encrypted HTTPS connection. We have procedures in place to keep your information secure once we have it.
However, no software or application can be completely secure, and we are unable to guarantee the security of your information while it is in transit. If you have any concerns that your information could have been compromised, please contact [email protected].
Your rights in relation to personal data
We respect your rights to access and control the personal data that we hold about you, as required by Data Protection Legislation.
This includes the right to:
- be informed
- get access to it
- rectify or change it
- restrict or stop processing it
You can exercise these rights at any time by emailing the NHS e-Referral Service programme team on [email protected]. Any requests for information will be acknowledged within one working day.
If you no longer want to take part in the patient-user panel, you can withdraw your information by contacting us on [email protected]. You do not have to provide a reason to withdraw.
If you wish to make a complaint about how we have managed your data, contact details for the Regulator are provided below:
Information Commissioner’s Office
Wycliffe House
Water Lane
Wilmslow
WSK9 5AF
Their website address is https://ico.org.uk.
Last edited: 20 February 2024 1:35 pm