SACT submissions dashboard

This dashboard is intended primarily for NDRS staff (and other interested stakeholders) to gauge the timeliness and content of Systemic Anti-Cancer Therapy (SACT) submissions made by providers. 

It presents last update dates, patient counts and delta counts (change) for the submissions by NHS trust. Users looking for a curated breakdown of counts or calculated metrics in the broader SACT dataset should look instead at the SACT Activity dashboard.

Acknowledgement

This work uses data that has been provided by patients and collected by the NHS as part of their care and support. The data is collated, maintained and quality assured by the National Disease Registration Service, which is part of NHS England (NHSE).

TBC

The SACT data set is a population-based resource of SACT activity reported routinely by NHS trusts in England. Data are collected on the SACT treatments of adult and paediatric patients, delivered in secondary and tertiary settings with the intention of improving survival, delaying further cancer progression or development, and improving disease-free or progression-free survival.

Find out more about the SACT data set.

TBC

This dashboard provides access to operational and clinical data produced by the National Disease Registration Service (NDRS). The data is derived from sensitive patient level information and is shared to support data quality improvement, service planning, and performance monitoring within health and care organisations.

While the data is de-personalised, small numbers or rare conditions may increase the risk of re-identification. Users must therefore take care when interpreting and sharing outputs.

By accessing this dashboard, users are expected to act in accordance with NHS information governance principles, the Caldicott Principles, and applicable data protection legislation, including the Data Protection Act 2018 and UK GDPR.

Users must ensure that:

• data is used only for legitimate health and care purposes
• data is not used to identify individuals, either directly or indirectly
• data is not shared, reproduced, or used outside authorised environments or without a clear business need
• any onward sharing is carefully considered, balancing the risk of disclosure against the intended benefit, and only shared with appropriate organisations or individuals
• outputs are interpreted appropriately, taking account of limitations in completeness, timeliness, and accuracy
• published or shared data relates only to their own organisation or is benchmarked against England-level data
• any published outputs meet anonymisation standards
• advice is sought from local Information Governance teams or a Caldicott Guardian where there is any uncertainty or risk

Permission must be sought in advance of any publication that includes Welsh and/or Scottish data from:

• Public Health Wales
• Public Health Scotland

When publishing data please ensure to follow the guidance for staff and stakeholders about how and when to acknowledge the use of NDRS data.

If you have any concerns about data use, interpretation, or disclosure risk, please email the NDRS team at to nhsdigital.ndrsdatahub@nhs.net 

The tool is produced by the National Disease Registration Service (NDRS). Please send your feedback or queries to ndrs.datasets@nhs.net or via the SACT Dataset Community. Please do not include sensitive or patient identifiable information.

It is important that these reports are dynamic. We aim to continue to adapt and improve them to meet the user needs. Please let us know any additional reports that would be most useful to you or any suggestions of how to best present the data.  Please send your feedback or queries to ndrs.datasets@nhs.net or via the SACT Dataset Community.

The new SACT data set community launched in September 2023 on FutureNHS. To request an invite to join the SACT data set community, please complete this short form.