If you get involved in our work as a Patient and Public Voice (PPV) Partner
How we process personal data when you contact us or work with us.
Purposes for processing
Patient and public participation is an essential part of NHS England’s way of working. We want to build strong and supportive relationships with our Patient and Public Voice (PPV) partners, so that we can work in partnership and use people’s experiences and views to inform our work. The term PPV Partners includes patients, service users, carers and families, and the general public.
Our approach to working with our PPV Partners is set out in our PPV Partner Policy, which describes 4 different types or categories of PPV Partner role:
PPV partners who choose to attend, respond or comment on open access engagement opportunities, for example, responding to online surveys or attending a meeting in public.
PPV partners who are invited to attend workshops, events or focus groups on a one-off basis.
PPV partners who are a member of a working group which meets regularly.
PPV partners who are in senior PPV roles that demonstrate strategic and accountable leadership and decision making activity.
Sources of the data
The data is provided by PPV Partners when registering to attend a meeting or event, and/or when applying to a specific PPV Partner role (through submitting an application form).
Categories of personal data and recipients
The information provided on the application form includes:
Name
Age address and postcode
E-mail address
Whether the applicant can access e-mail
Whether the applicant is a:
- patient or health service user (current or previously)
- carer of a patient currently or previously using health services
- representative of a patient organisation
- other
Ability to use telephone, e-mail, and internet to communicate and take part in meetings
Ability to commit time
Other PPV roles
Skills and experience
Any access or support needs to enable participation
References
The information is used to identify and engage with PPV Partners, and enable communication and involvement in PPV activities.
Legal basis for processing
For GDPR purposes NHS England’s lawful basis for processing is Article 6(1)(e) '…exercise of official authority…'.
Where NHS England process special categories of personal data about you, including any information relating to physical or mental health, we use Article 9(2)(h) of the UK GDPR: Health or social care (with a basis in law). The basis in law is NHS Act 2006 Section 13Q Public involvement.
Last edited: 27 May 2026 11:02 am