DAPB3009 Healthy Child Programme

In November 2016, NHS England published Healthy Children: Transforming Child Health Information, a digital strategy describing how making child health information more accessible, and sharing this information, can support parents and professionals in their care of children and young people.

Phase 1 - This information standard supported the move to sharing of child health information by setting out the Healthy Child Record specification that care providers were asked to comply with, on a local basis, to ensure consistent use of standardised data formats across all providers.

Phase 2 - Interoperability and Implementation - of this information standard now introduces the mechanisms for sharing of this standardised data.  

This information standard is published under section 250 of the Health and Social Care Act 2012. An Information Standards Notice provides an overview of scope and implementation timescales, and the other listed documents provide further detail for those who have to implement the information standard.

What's Changed

Phase 2.3: The New born screening event now includes testing for Spinal Muscular Atrophy (SMA).  This is an in-service evaluation to assess the feasibility of adding SMA into the national new born blood spot screening programme. 

SMA will be added to the list of conditions forming part of the newborn blood spot screening result sub-status simple reference set.