Chief data architect
Lead: Jem Rashbass (interim)
Strategic insight and advice on data architecture and National Disease Registration Service to leadership of Data Services directorate.
Strategy and policy
Lead: James Austin (interim)
Driving the development and delivery of the Data Strategy to meet the priorities and needs of our commissioners, citizens and patients, the health and social care system, and life-science researchers.
Developing and leading the key strategic partnerships with a wide range of stakeholders enabling the effective delivery of a customer-centred strategy.
Data curation and open data
Lead: Tomas Sanchez Lopez (interim Director)
Lead: Lucy Elliss-Brookes (interim)
Ensuring we receive high quality, timely and relevant data for analysis and reporting that underpins care provision, enabling customers and other data users to inform policy, commissioning, and research.
Reducing the burden of data collection, processing, and management across the data curation pathway, including the application of automation to support data collection and curation activities.
Maximising the potential utility of data from the point of collection throughout organisation-wide data use, enabling data to be linked at patient and record level and optimising data quality.
Open data and chief statistician
Lead: Chris Roebuck
Improving transparency in health and care data and ensuring our data and information is publicly available and trusted in the form of statistical publications, indicators and other outputs.
Promoting broader use of Open Data by releasing existing data in timely, accessible, shareable, and innovative formats.
Data design and integration
Lead: Richard Irvine (interim)
Ensuring that through the live information flows we receive high quality timely data, improving the quality of data at submission and supporting analysis and reporting to enable quality care provision for all live (BAU) flows.
Consulting on, agreeing and assuring well-defined datasets and collections that are currently being curated or will be curated.
Developing extractions of data from source, delivering complete, consistent and accurate data, and mapping to logical, coded and appropriate data models.
Lead: Alex Elias
Developing and maintaining the application and governance of standards required to process use of data to enable service delivery, including the curation of terminology and reference data, information standards for data onboarding and clinical standards for code ontology.
Maintaining and developing standardised codes, reflecting existing and transforming services, to identify who and where clinical services are provided and commissioned.
Ensuring health and care service providers can be accurately identified.
Analysis and technology
Lead: Steven Knight (interim Director)
Delivering the directorate’s Analytics Insights Service, and developing an Advanced Analytics function to develop expertise in a range of analytical approaches and techniques.
Development of a technology function that will provide industry leading platforms and tools that critically underpin all the services we offer.
Lead: Tim Gentry
Developing and maintaining the systems, infrastructure and technical functionality to enable service delivery, including the secure management and development of systems that provide data into our services, teams and partners.
Research and clinical trials
Lead: Michael Chapman (Director) and Dani Breitinger-Blatt
Deliver user-centred services that ensure that the data collected and held in trust by NHS Digital is used securely, legally, and transparently for planning and research that improves the outcomes, experience, and efficiency of health and care.
Developing strategic relationships with key stakeholders, including academia, research funders, industry, research participants, and other interest groups.
Delivering improvements to our data access through the Data Access Programme, including integration of data access for the National Disease Registration Service with other NHS Digital processes. Oversight of major investments in new research services, including NHS DigiTrials and development of a national Trusted Research Environment Service.
National Disease Registration Service (NDRS)
Lead: Sarah Stevens
The National Disease Registration Service (NDRS) manage the National Cancer Registration and Analysis Service (NCRAS) and the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS).
For these population based registration services we collect, curate and quality-assure data from every patient in England diagnosed and/or treated with these registerable conditions.
Our analysis teams provide expert analysis and interpretation of the data we collect, to understand the frequency, nature, cause and outcome often working in partnership with academic and third-sector colleagues.
NDRS is an international leader in population-based disease registration services, real-world clinical data, quality assurance, surveillance and monitoring. We also have significant skills in data science, analytics and complex data processing systems.
We bring innovation and new technology to disease registration and analysis to enable advances in understanding and managing disease, improving patient outcomes.
Large programme delivery
Delivering major data programmes across the directorate, including managing the COVID-19 data programme portfolio.