We treat the data we hold with great care. All data which is shared by NDRS is subject to robust rules relating to privacy, security and confidentiality and only the minimum amount of data necessary to achieve the relevant health and social care purpose will ever be shared.
Wherever possible, de-personalised data or anonymous data is used and shared to protect patient confidentiality. We also apply the National Data Guardians Caldicott Principles to ensure we only provide the minimum amount of data necessary for the purpose for which it is to be used. In some cases, only personally identifiable data can be shared to achieve the purpose, but this is always done in accordance with the law and subject to safeguards to ensure that the data is kept safe and secure.
You can learn more about different types of data including de-personalised and anonymous data on the 'Understanding Patient Data' website.
Data Access Services (DARS)
The data release function for NDRS is now managed by the Data Access Release Service (DARS) and all applications and enquiries for the National Cancer Registration and Analysis Service (NCRAS) or the National Congenital Anomaly and Rare Diseases Registration Service (NCARDRS) data have been migrated from the Public Health England Office for Data Release to DARS.
NDRS cancer registration data is made available to properly authorised analysts and researchers under our data access arrangements through the Data Access and Release Service (DARS).
Potential requestors should familiarise themselves with the guidance on the DARS website and the data dictionary covering the data available for request.