The data we collect is registered, checked and quality assured by skilled registration officers. If necessary, they will check with the hospital, laboratory or screening service who sent us the data to make sure it is correct and complete.
Analysis and linkage
We analyse and link the data we collect to other patient data NHS Digital already holds, such as:
- hospital attendance data
- births data
- primary care prescriptions data
- mortality data
By linking data held by the NCRAS to that collected by the National Cancer Diagnosis Audit (managed by Cancer Research UK), we can audit the referral of cancer patients for investigation and help improve early diagnosis. By linking to data from the National Institute for Cardiovascular Outcome Research (NICOR), researchers can study the links between cancer and cardiovascular diseases.
We also link rare disease and congenital anomaly data to:
- New born Hearing Screening data, to understand more about congenital hypothyroidism (CHT) and the effectiveness of the NHS new born screening programme
- High Cost Medicines data, to identify patients who have received specific high cost medicines and see how well these have worked
We will use the data to publish national statistics and data outputs that contain only anonymous data which cannot be used to identify individuals. We never publish any data that could identify you.
You can see the data we publish in the NCRAS publications library, for publications using cancer data, and in the NCARDRS congenital anomaly annual data statistics.