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Part of National data opt-out operational policy guidance document

Appendix 7: External review of the national data opt-out policy

This guidance document underwent an external review process which involved organisations from across the health and social care sector.  

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Summary

This guidance document underwent an external review process which involved organisations from across the health and social care sector.  

The below lists the health and adult social care organisations who participated in the external review process for this guidance, and/or were involved in reviewing individual policy position papers and informing individual policy decisions.

Health and Adult Social Care Organisations involved in the review of the National Data Opt-Out Operational Policy Document included:

  • Department of Health and Social Care
  • NHS England
  • National Data Guardian Panel and Steering Group
  • NHS Health Research Authority
  • Confidentiality Advisory Group
  • Office for National Statistics
  • Information Governance Alliance
  • Royal College of Physicians
  • Royal College of General Practitioners
  • Royal College of Nursing
  • NHS Business Services Authority
  • Local Government Association
  • Professional Records Standards Body
  • Public Health England
  • Healthcare Quality Improvement Partnership
  • NHS Blood and Transplant
  • Human Tissue Authority
  • Care Quality Commission
  • Clinical Practice Research Datalink
  • NHS Improvement
  • NHS Resolution
  • Healthwatch England
  • Wellcome Trust
  • National Association for Patient Participation
  • Association of Medical Research Charities
  • Macmillan Cancer
  • Care Provider Alliance
  • Genetics Alliance UK
  • Cancer Research UK
  • Richmond Group
  • Skills for Care
  • Association of Directors of Adult Social Services
  • Borough of Poole - Commissioning and Improvement – Peoples Services
  • City of Wolverhampton Council
  • Haringey Metropolitan Council
  • Kirklees Metropolitan Council
  • Lincoln County Council
  • York City Council
  • North Cumbria CCG
  • Cumbria Partnership NHS Foundation Trust
  • Leeds Community Healthcare NHS Trust
  • Newcastle Upon Tyne Hospitals NHS Foundation Trust
  • Manchester University NHS Foundation Trust
  • East London Health Trust
  • Calderdale and Huddersfield NHS Foundation Trust
  • West London Mental Health Trust
  • Buckinghamshire Healthcare NHS Trust 
  • East London NHS Foundation Trust
  • Leeds and York Partnership NHS Foundation Trust
  • South Essex NHS Foundation Trust
  • Medway NHS Foundation Trust
  • Spencer Private Hospital
  • University College London - Great Ormond Street Institute of Child Health Developmental Biology & Cancer Programme
  • University of Sheffield Advanced Manufacturing Centre
  • NHS Darlington Community Commissioning Group
  • Bristol, North Somerset and Gloucester Clinical Commissioning Group
  • North East Commissioning Support Unit (CSU)
  • NHS Arden & Greater East Midlands CSU
  • NHS North of England CSU
  • NHS South, Central and West CSU
  • NHS Midlands and Lancashire CSU
  • NHS South and West CSU
  • Leeds City Council
  • South Gloucester Council
  • NHS National Services Scotland
  • NHS Wales Informatics Service
  • Welsh Government
  • Scottish Government
  • Care England
  • National Care Forum
  • Tameside Metropolitan Borough Council
  • Mid Cheshire Hospitals NHS Foundation Trust
  • Queen Victoria Hospital NHS Foundation Trust

Last edited: 18 June 2019 2:38 pm

Chapters

  1. National data opt-out operational policy guidance document
  2. 1: Introduction
  3. 2: What are national data opt-outs?
  4. 3. Setting an opt-out
  5. 4. Which organisations does the opt-out apply to?
  6. 5. When does a national data opt-out apply?
  7. 6. When does a national data opt-out not apply?
  8. 7. Policy considerations for specific organisations or purposes
  9. 8. Applying the national data opt-out
  10. 9. Analysis of national data opt-outs
  11. 10. Compliance with the national data opt-out
  12. 11. Further information
  13. Appendix 1: Abbreviations
  14. Appendix 2: Definitions
  15. Appendix 3: Rationale and supporting information
  16. Appendix 4:Changes to NHS number
  17. Appendix 5: Information required by law or court order
  18. Appendix 6: Confidential Patient Information (CPI) definition
  19. Appendix 7: External review of the national data opt-out policy