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Independent Advisory Panel on Data Release (IAPDR) Terms of Reference
Support, challenge, and advise NHS Digital to ensure appropriate, timely access to NDRS data through transitional arrangements.
Objectives of the IAPDR
IAPDR is an advisory body that will support and challenge NHS Digital on transitional arrangements for access to data from the National Disease Registration Services through the Office for Data Release process. This includes:
The effectiveness of mechanisms to support and promote appropriate, timely data sharing from NDRS for secondary purposes.
Delivering transparent and effective public and/or professional facing communication related to the transition of ODR services into NHSD.
Interactions, alignments and responsibilities of UKHSA Office for Data Release with NHSD data release services.
The extent to which NHSD planned ways of working with regards to data sharing are customer-centric and focused on improving operational delivery for service users.
Any other issues that IAPDR believe are necessary to be considered, in support of legitimate and lawful access to NDRS data for secondary purposes.
Professor David Forman Chair
3 patient and public voice representatives
representative of UK Faculty for Public Health
representative of the National Cancer Research Institute
representative from the Association of British Pharmaceutical Industries
representative of the Royal College of General Practitioners
representative of the Office of the National Data Guardian
2 representatives of the academic community, nominated by Health Data Research UK (HDR UK) and the National Institute of Health Research
Director / Associate Director of Research and Clinical Trials, NHS Digital (observer)