Notes for editors
You can find more case studies of how data is used for healthcare planning and research here:
- HDR UK Statement on Trusted Research Environments - HDR UK
- Interim findings from first-dose mass COVID-19 vaccination roll-out and COVID-19 hospital admissions in Scotland: a national prospective cohort study - The Lancet
o The EAVE 2 study, which was the first data study in the world to show the effectiveness of the single dose of vaccine in reducing hospitalisation at 28 days.
o A study funded by Cancer Research UK using data from the Genomes Project found a new way to identify tumours which could be sensitive to particular cancer therapies. The new algorithm, called MMRDetect, allows researchers to see which tumour cells have weaknesses in their ability to repair themselves and means cancer patients can receive personalised treatments.
o Studying differences in diabetes incidence between different ethnic groups
o Redesigning patient pathways for back pain
o Contributing to the development of guidelines for managing hypertension
Trusted research environments
TREs provide approved researchers with access to the data that they require for ethically and legally approved research projects and which has been de-identified to ensure patients cannot be directly identified from the data. Data is accessed in a secure environment and its use tracked and published. Safeguards ensure that no identifiable data leaves the secure environment, providing greater assurance that sensitive data is handled securely.
As part of the TRE data access process, NHS Digital will seek advice from the Independent Group Advising on the Release of Data (IGARD) and from the GP Professional Advisory Group to ensure that the highest standards of governance are upheld. All approved access to data in the TRE will also be published on the Data Release Register.
TREs are already being used to further lifesaving research. For example, NHS Digital is working with the BHF Data Science Centre as part of the CVD-COVID-UK initiative to provide approved researchers with access to de-identified data in an NHS Digital TRE. This is being used for research investigating the impact of COVID on cardiovascular diseases, and the safety of vaccines. These studies are using data from general practice and demonstrate the importance of linking data across health settings.
Last edited: 20 July 2021 9:30 am