Secure access to health data improved to aid coronavirus research
Notes for editors
- The ‘5 Safe’s Framework’ is the cornerstone of data governance. It’s used by a range of safe data labs across the UK and ensures that researchers have the right credentials and training [safe people], that they are working on safe projects and with safe data; all in a safe setting where only safe [research] outputs ever leave. This greatly reduces the risk of sensitive data being used incorrectly.
- The British Heart Foundation (BHF) Data Science Centre’s vision is to improve the public’s cardiovascular health through the power of large-scale data and advanced analytics across the UK. The centre works in partnership with patients, the public, NHS, researchers and clinicians to facilitate better, faster, more efficient, cost-effective, ethical, safe and scientifically robust data-driven research and innovation into the causes, prevention and treatment of all diseases of the heart and circulation (including, for example, heart attacks, heart failure, heart rhythm disorders, stroke, peripheral vascular disease and vascular dementia). Funded by the BHF for an initial £10M over 5 years and embedded within Health Data Research UK (HDR UK), the centre will provide the leadership, co-ordination, and engagement needed to deliver this vision, through building capability, capacity and infrastructure to drive excellence in data-enabled cardiovascular research. Its work will be underpinned by the Health Data Research Innovation Gateway, which upholds the highest levels of information governance, protecting the privacy and security of patients’ data, and benefits from alignment with Health Data Research UK’s existing network of experts, including Health Data Research Hubs, and the wider cardiovascular research community. The centre is working with relevant data controllers through the UK Health Data Research Alliance, to provide knowledge and expertise to help researchers from the NHS, academia and industry find, access, understand, connect and analyse the UK’s unique cardiovascular ‘big data’ that is distributed across national registries, NHS electronic medical records and other relevant datasets. The ultimate aim of the centre is to enable responsible, ethical research that combines the power of advanced analytic methods with the UK’s large-scale and diverse cardiovascular data. High impact outputs will help to shape better cardiovascular health services, provide patients and health professionals with the tools to make better decisions, and bring the latest medical discoveries to patients across the UK faster than ever before. To find out more about the BHF Data Science Centre’s activities and the trusted research environment we have created with NHS Digital, please email firstname.lastname@example.org
- Health Data Research UK (HDR UK) is the national institute for health data science. Its mission is to unite the UK’s health data to enable discoveries that improve people’s lives. It is funded by UK Research and Innovation, the Department of Health and Social Care in England and equivalents in Northern Ireland, Wales and Scotland, and leading medical research charities. HDR UK was set up in 2018 to support research on health data at scale to advance its understanding of disease and enable new discoveries that will ultimately improve health and care. It has established national research programmes that use data at scale and is building an infrastructure to enable the responsible access and analysis of this data. This work is structured around three key themes:
- Uniting health data – which includes the UK Health Data Research Alliance and the Health Data Research Innovation Gateway
- Improving health data – which includes tools, methods, Health Data Research Hubs and the BHF Data Science Centre
- Using health data – which includes research discoveries and skills development across four national priority areas: Understanding the Causes of Disease, Clinical Trials, Public Health and Better Care.
It is delivering this strategy through its inclusive, team-oriented One Institute ethos - bringing together NHS, universities, research institutes and charities - built on its own values.
Last edited: 21 October 2021 7:33 am