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General Data Protection Regulation (GDPR) guidance

This guidance from the national GDPR working group and IGA will help the NHS, social care and partner organisations prepare for EU General Data Protection Regulation (GDPR), when it begins in May 2018.

This policy and guidance is being developed by the national GDPR working group, chaired by NHS England, for publication by the Information Governance Alliance (IGA).Those with senior responsibility for Information Governance can use the guidance to learn how to comply with the GDPR. This includes Caldicott Guardians, operational IG leads and managers, plus all employees.

The guidance will help organisations to make the changes needed due to the EU General Data Protection Regulation, which will happen even though the UK is not an EU member state.

If you have any specific queries, please contact us and we will try and answer these as best possible. However, where it is not possible or the query best sits with another team or organisation we will let you know. We also recommend you contact the Information Commissioner's Office (ICO) with enquiries.

Further information:

Contact the Information Commissioner's Office (ICO) if you have an enquiry on GDPR.

When guidance is being published

The IGA is working hard with other partners to try and ensure material is published as quickly as possible. However, we do acknowledge the need to consider both the forthcoming Article 29 working party guidance and that by the ICO in reviewing and drafting our advice pieces. We will also review, where appropriate, published advice once the Data Protection Bill is approved as it may change the advice provided.

The list below gives an idea of the expected timeframe for publication. Please note this may change and details will be updated here.


March-May 2018

  • Privacy by design and default
  • Personal data breaches and notification
  • Profiling and risk stratification
  • GDPR overview
  • Primary care suite: optometry, pharmaceutical and dental
  • Transparency and subjects' rights
  • Social care awareness guidance
  • Pseudonymisation

The IGA will continue to provide more information about how health and care organisations are affected and what you can do as it becomes available.

Watch this GDPR webinar

Please watch a GDPR webinar that was presented from Leeds in February 2017.

General guidance

For more general information about preparing for GDPR please contact the Information Commissioner's Office.

Last edited: 10 March 2020 10:28 am