We collect and publish data about people with dementia at each GP practice. So that the NHS (GPs and commissioners) can make informed choices about how to plan their services around their patients' needs.
These publications include a dementia diagnosis rate indicator, as not everyone with dementia has a formal diagnosis. This statistic compares the number of people thought to have dementia with the number of people diagnosed with dementia, aged 65 and over. These data are published every month.
- Open the dementia 65+ estimated diagnosis rate indicator
- Open the Quality Outcomes Framework (QOF) recorded dementia diagnosis.
Why do we collect this data?
The Department of Health (DH), on behalf of the Secretary of State for Health and NHS England, directed NHS Digital to establish a data collection so we can receive specific dementia diagnosis data. These data support the Prime Minister's challenge on dementia 2020 which aims to improve the national diagnosis rate of dementia.
For each GP practice included in this data collection, NHS Digital receives a count of the number of patients with a dementia diagnosis in their clinical record, as defined by the QOF dementia business rules broken down by age and gender, as well as a count of the total number of registered patients at the GP practice. No personal identifiable data are included in this data collection.
These data inform the publication Patients in England with a record of dementia diagnosis on their clinical record, which reports the monthly recorded prevalence of dementia. The data for 2015-16, 2016-17 and 2017-18 are available through the publications.
Amendment to 2016-2017 Recorded dementia diagnoses data collection
An amendment was made to the data collection and came into force on the 1 January 2017. This data collection was accepted at the SCCI meeting on 27 July 2016.
The Data Provision Notice and technical specifications are available. This technical specification supersedes the v2.0 technical specification for the 2016-17 Recorded Dementia Diagnoses data collection. This collection uses v35.0 of the QOF dementia business rules.