May 2026

Each month we share the latest news from the National Disease Registration Service (NDRS) including recent publications, data releases and upcoming events. 

NDRS is part of NHS England and includes the National Cancer Registration and Analysis Service (NCRAS) and the National Congenital Condition and Rare Diseases Registration Service (NCARDRS). NDRS uses data provided by patients and collected by the NHS as part of their care and support. This data is used to detect changes in the health of the population and to help the NHS improve the diagnosis and treatment of these conditions.

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NDRS news

NDRS Wins Healthcare Organisation of the Year at the British Data Awards

NDRS has been named Healthcare Organisation of the Year at this year’s British Data Awards - a fantastic achievement that recognises the scale, quality and impact of our work across cancer, congenital conditions and rare diseases.

This award highlights NDRS’s role as a globally trusted curator of high quality disease registration data, and our contribution to improving population health and patient outcomes through expert, timely analysis and insight.

Competition was particularly strong this year, with a record 462 entries submitted for the sixth edition of the awards. Finalists included FTSE 100 companies, innovative start ups, technology unicorns, public sector leaders, and essential not for profits - making this win even more significant.

A huge congratulations to the entire team. This achievement is a testament to the expertise, collaboration and commitment across NDRS, and another clear demonstration of why the work happening across Data and Analytics is so vitally important.

Data releases and tools

Systemic Anti-Cancer Therapy (SACT) Time to First Treatment (TTFT) dashboard has been updated

The SACT TTFT dashboard has been updated to include an additional year of data and now covers National Institute for Health and Care Excellence (NICE) indications published from January 2019 to June 2025. 

The dashboard includes 109 indications from the NICE Cancer Drugs Fund (CDF) list and reports the time taken for patients to receive SACT treatment following NICE approval for routine commissioning.