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Hereditary medical conditions

This service provides the confidential transfer of information relating to an existing medical condition which is hereditary between the GPs of adoptees and birth relatives. Provided the adoptee or birth relative can be identified from the information available and is currently registered with a GP in England, Wales or the Isle of Man, medical information about existing hereditary conditions may be passed on. It is advisable to use the Death Registrations enquiries service before proceeding with a request to pass on information about hereditary medical conditions.

What information can be passed on?

The service is subject to the consent of both GPs/Consultants involved, and only information relating to an existing medical condition which is hereditary will be passed on.

The service does not include the facilitation of any contact between the applicant and the adoptee/birth relative.

How do I use this service?

You must provide the following two items:

1. A signed letter from your GP/Consultant which includes:

  • Information relating to the medical condition which is hereditary 
  • GP's/Consultant's name and address (including post code)
  • General Medical Council code.

The GP/Consultant must not include the adoptee's or birth relative's personal identifiable details in this letter.

2. All known identifying details about the adoptee or birth relative including:

  • Full post-adoptive names, date of birth or approximate age if known (and addresses if known) for adoptees
  • A copy of the adoptee's original birth certificate (if available)
  • Full names, date of birth or approximate age if known (and addresses if known) for birth relatives.

These should be sent to:

Adoption Registration Service

NHS Digital

Smedley Hydro Rm B108

Trafalgar Road

Southport

PR8 2HH

 

 

 

 

 

 

 

 

 

 

 

 

 

Have a question? Call us on 0300 303 5678 or contact enquiries@nhsdigital.nhs.uk.

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