Learning Disabilities Data

The Secretary of State for Health and Social Care, on behalf of the Department of Health and Social Care (DHSC), has directed NHS England to collect and analyse data in connection with the Learning Disabilities Observatories GPES Extract Data Collection Directions 2018.

From August 2020 the collection has been known as the Learning Disabilities Data Extract (LDD). This is because the Learning Disabilities Observatory was removed as an organisation of Public Health England (PHE); the programme of work transferred to NHS England.

NHS England collects the required data from general practices in England. The data is used:

• to support the production of primary care indicators covering care quality for people with a learning disability
• for the benchmarking and quality improvement of primary care provision for people with learning disabilities

to support improved commissioning and delivery of healthcare for people with learning disabilities.

This Notice is served on General Practices in England whose system suppliers are in scope of this data collection:

• EMIS
• Cegedim

This is an established, ongoing data collection via GPES. The data has been collected since April 2016. The data is collected on an annual basis.

The GP Collections webpage provides further details on when this data collection will take place. Please note that this page is frequently edited to reflect changes to the GPES collection schedule; users are advised to check the GP Collections timetable regularly for updates.

5 October 2023

Version 6.0 of this Notice has been issued to reflect the updated burden methodology for GPES extracts.

1 September 2023

Version 5.0 of this Notice issued both to reflect legal and organisational changes which came into effect in July 2022 and February 2023 and to support the 2022-2023 collection which includes the addition of ethnicity breakdown to certain indicators.