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Data Provision Notice dementia

Data Provision Notice for the collection of aggregated numbers of patients in England with a record of dementia diagnosis on their clinical record for General Practices in England.

icon Read the Data Provision Notice: dementia [244.68KB]

Overview of the collection

Appropriate access to mental health services is an important priority for everyone involved with the NHS. It is essential that patients diagnosed with particular conditions, including dementia, and their carers have access to all the services they require. These data are being collected on behalf of NHS England (NHSE) and the Department of Health (DH) to help ensure that there is an accurate national count of the numbers of patients diagnosed so that national and local initiatives can respond appropriately and monitor increases. The national initiatives are being coordinated with information from the Alzheimer's Society.

Scope of the collection

All general practices in England.
The HSCIC and NHSE will not receive any patient-level data. The HSCIC and NHSE will receive data aggregated at general practice level. An Information Governance assessment of this collection advised that the data extracted is non-identifiable and there is no requirement for fair processing under the Data Protection Act 1998.
The data collected will be published on the HSCIC website on a monthly basis starting in September 2015.

Legal basis for provision of data

section 259 of the Health and Social Care Act.


Collected every month until the end of the 2015/16 financial year, superceeded by 2016/17 collection, see also the Data Provision Notice: Dementia Data 2016 -2017

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