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UK Genetics Testing Network (UKGTN) data

Summary

Controller NHS Digital
How we use the information (processing activities)

To analyse activity data from UK Genetics Testing Network (UKGTN) member laboratories to calculate rates of genetic testing for the UK population.
Does this contain sensitive (special category) data such as health information? No
Who are recipients of this data?

See the data release register for more details.
Is data transferred outside the UK? No
How long the data is kept 1 year minimum after no longer required
Our lawful basis for holding this data Legal obligation
Your rights
  • Tick Be informed
  • Tick Get access to it
  • Tick Rectify or change it
  • Cross Erase or remove it
  • Tick Restrict or stop processing it
  • Cross Move, copy or transfer it
  • Cross Object to it being processed or used
  • Cross Know if a decision was made by a computer rather than a person
How can you withdraw your consent?

Consent not the basis for processing
Is the data subject to decisions made solely by computers? (automated decision making) No
Where does this data come from? Collection of laboratory reports from UK Genetics Testing Network (UKGTN) member labs
The legal basis for collecting this data

Legal obligation (Direction) and management of health and social care systems