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National Cancer Registration Dataset


Why and how we process your data in the National Cancer Registration Dataset and your rights.

Controller NHS Digital, NHS England and Public Health England
How we use the information (processing activities)

The data is analysed, potentially in combination with other health and/or population datasets to understand the impact of COVID-19, its risks to patients and health services and to monitor and manage the response to COVID-19 by health and social care bodies and the Government. The data will be used for these purposes by NHS Digital and external organisations subject to authorisation via NHS Digital’s Data Access Request Service (DARS).

Does this contain sensitive (special category) data such as health information? Yes
Who are recipients of this data?

External users as permitted through Data Sharing Agreements (DSA) via the Data Access Request Service (DARS)  - see the data release register for more details.

Is data transferred outside the UK? This data is not transferred out of the UK
How long the data is kept The data will be kept for as long as NHS Digital is directed to operate the COVID-19 Public Health NHS England Information Systems and undertake the system delivery functions. The expected end date is currently 31 March 2021, unless revoked earlier or replaced by a further direction.
Our lawful basis for holding this data Legal obligation
Your rights
  • Tick Be informed
  • Tick Get access to it
  • Tick Rectify or change it
  • Cross Erase or remove it
  • Tick Restrict or stop processing it
  • Cross Move, copy or transfer it
  • Cross Object to it being processed or used
  • Cross Know if a decision was made by a computer rather than a person
How can you withdraw your consent?

Consent is not the basis for processing.

Where does this data come from? The National Cancer Registration and Analysis Service (NCRAS), part of Public Health England (PHE), is the population-based cancer registry for England. It collects, quality assures and analyses data on all people living in England who are diagnosed with malignant and pre-malignant neoplasms, with national coverage since 1971. It produces the national cancer registration dataset for England. The primary role of NCRAS is to provide near real-time, cost-effective, comprehensive data collection and quality assurance over the entire cancer care pathway. To achieve this, it receives data from across the National Health Service (NHS). For further information, see:
The legal basis for collecting this data

Article 6 - Legal Obligation (Requested to establish information system),
Article 9 - Substantial Public Interest.
DPA 2018:
Schedule 1, Paragraph 6 - Statutory etc and government purposes